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Eye donation from palliative care and hospice care settings

Eye donation from palliative and hospice care contexts: investigating potential, practice, preference and perceptions

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ISRCTN
Registry ID
ISRCTN14243635
Enrollment
252
Registered
2019-10-15
Start date
2019-12-01
Completion date
Unknown
Last updated
2023-11-20

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Eye donation Not Applicable

Interventions

The researchers plan to find out how many patients from three SPCS and three HCS across England could have been eye donors, and how many patients were actually approached and referred to TS over a one

Sponsors

University of Southampton
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. Patients under the care of palliative and hospice care services and their nominated carer 2. Health Care Professionals working in palliative and hospice care settings

Exclusion criteria

Exclusion criteria: Patients under the age of 18 years

Design outcomes

Primary

MeasureTime frame
Phase 1. Number and characteristics of the potential eye donation population, and current referral rate for each research site established via retrospective note review of 1,200 deceased patient records Phase 2. Qualitative data from stakeholders to assess their attitudes, knowledge and preferences concerning conversations about eye donation collected from a secondary analysis of existing datasets, and interviews with service users. This data will be used to construct a questionnaire survey that will be sent to 220 service providers in order to explore attitudes, knowledge and preferences concerning eye donation at a national level. Phase 3. Agreed intervention designed to change behaviours, including pathways for implementation, generation of programme/action logic model, descriptive statistics gathered from Delphi survey rounds indicating level of agreement with the proposed intervention activities and process

Secondary

MeasureTime frame
There are no secondary outcome measures

Countries

England, United Kingdom

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 8, 2026