Progression in home care: Motivational counselling for informal caregivers – survey (phase I)

Progression in home care: Motivational counselling for informal caregivers – survey (phase I) ProCare

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN13390923

Enrollment

5000

Registered

2022-09-07

Start date

2022-09-01

Completion date

Unknown

Last updated

2024-01-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Investigation of the reasons for using or not using informal caregiving counselling and the needs and individual demands of informal caregivers Not Applicable

Interventions

25000 questionnaires will be distributed to adult informal caregivers by 500 care assessors of the "Medizinischer Dienst (MD) Bayern". The participants will have made an initial application for a care

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Adult informal carers in Germany

Exclusion criteria

Exclusion criteria: Does not meet the inclusion criteria

Design outcomes

Primary

Measure	Time frame
Reasons for using or not using care counselling are measured by self-report questions at baseline	—

Secondary

Measure	Time frame
All measured at baseline: 1. Subjective burden of caregivers measured using the Burden Scale for Family Caregivers -short form (BSFC-s) 2. Quality of life of caregivers measured using a visual analogue scale (VAS) taken from the CarerQol-questionnaire 3. Benefits of being a caregiver measured using the Benefits of Being a Caregiver scale (BBCS) 4. Coping strategies measured using the COPE 6, derived from the Brief COPE questionnaire 5. Loneliness of caregivers measured using the Short Scale for Measuring Loneliness 6. Physical activity of caregivers measured using questions based on the RKI Survey Gesundheit in Deutschland aktuell 7. Sources of information on care-related topics measured using questions based on Gräßel et al 8. Evaluation of the current care situation measured using questions based on the stress appraisal model of Lazarus 9. Utilization of formal support measured using questions based on the Dementia Assessment of Service Needs (DEMAND) questionnaire 10. Relationship quality measured via self-report 11. Physical and mental health of caregivers measured using questions based on the Short-Form-Health-Survey (SF-12) 12. (Sociodemographic) data of caregivers including immigration status measured via self-report 13. Utilization of informal support measured via self-report 14. (Sociodemographic) data of care receivers measured via self-report 15. Activities of daily living, instrumental activities of daily living, and supervision are measured by self-report questions	—

Measure

Time frame

All measured at baseline: 1. Subjective burden of caregivers measured using the Burden Scale for Family Caregivers -short form (BSFC-s) 2. Quality of life of caregivers measured using a visual analogue scale (VAS) taken from the CarerQol-questionnaire 3. Benefits of being a caregiver measured using the Benefits of Being a Caregiver scale (BBCS) 4. Coping strategies measured using the COPE 6, derived from the Brief COPE questionnaire 5. Loneliness of caregivers measured using the Short Scale for Measuring Loneliness 6. Physical activity of caregivers measured using questions based on the RKI Survey Gesundheit in Deutschland aktuell 7. Sources of information on care-related topics measured using questions based on Gräßel et al 8. Evaluation of the current care situation measured using questions based on the stress appraisal model of Lazarus 9. Utilization of formal support measured using questions based on the Dementia Assessment of Service Needs (DEMAND) questionnaire 10. Relationship quality measured via self-report 11. Physical and mental health of caregivers measured using questions based on the Short-Form-Health-Survey (SF-12) 12. (Sociodemographic) data of caregivers including immigration status measured via self-report 13. Utilization of informal support measured via self-report 14. (Sociodemographic) data of care receivers measured via self-report 15. Activities of daily living, instrumental activities of daily living, and supervision are measured by self-report questions

—

Countries

Germany

Contacts

Public ContactAnna Pendergrass

anna.pendergrass@uk-erlangen.de+49 9131/85-34142

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026