Parents/carers of children and young people with obsessive-compulsive disorder (OCD) Mental and Behavioural Disorders Obsessive-compulsive disorder
Conditions
Interventions
Current interventions as of 09/09/2021:
This project aims to identify workable ways of providing support that would meet the needs of parents/carers of children with OCD. The study has
Sponsors
University of Manchester
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Parents: 1. Parents/carers of children or young people (CYP) aged 8-18 who have a diagnosis of OCD 1.1. A parents’/carers self-reported acknowledgement of their child’ formal diagnosis of OCD is adequate to meet the inclusion criteria for the study 1.2. Parents of children who have recently (defined as within the last year) exceeded the age of 18 or parents who are not currently in their caregiver role, yet whose parenting/caring experience is still reflective of the needs of current parents/carers of CYP 1.3. A carer is defined as an adult who has parental responsibility for CYP with OCD 2. Interpreters will be available for participants who are unable to speak English Professionals: 1. Professionals who have experience of working with Children and Young People with OCD (including OCD focused (The same inclusion criteria apply to all phases of the study)
Exclusion criteria
Exclusion criteria: 1. Parents of children and young people or professionals with OCD who live outside of the UK 2. Participants (for Phase 2 or 3) who do not have access to a computer, tablet or smartphone to join Zoom or Microsoft teams conferencing software 3. Professionals who have no experience in supporting families of children and young people with OCD
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Phase 1: 1. Perspectives on parents/carers support needs, assessed using one-to-one qualitative interviews (and an optional 1-week journal) with parents/carers and focus groups with professionals in October 2020- April 2021 2. Current evidence on available support strategies determined using a systematic review in April 2021 3. Mapping of local service provision using data obtained from focus groups, demographic surveys and additional information obtained from Principle Investigators at Participating Centres in October 2020 - April 2021 Phase 2 & 3: Evidence from Phase 1 will be used to inform synthesis events. Synthesis events in Phase 2 and 3 will identify: 1. A roadmap of stakeholder identified strategies and resources scored according to key intervention design criteria (APEASE) in August 2021 2. Evidence and stakeholder informed identification of key components of a future intervention and an outline for its testing in a subsequent study in August 2021 3. Outputs that can enhance parent/carer, academic, professional and lay understanding of OCD in August 2021 | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactEmma Sowden
Outcome results
None listed