People with long-term conditions attending pain, rheumatology and multiple sclerosis clinics. Other
Conditions
Interventions
Participants who are eligible and consent to receive coaching from volunteer peer coaches will be randomly allocated 1:1 ratio using random permuted blocks, stratified by outpatient clinic (pain, mult
Sponsors
Torbay and South Devon NHS Foundation Trust
Eligibility
Sex/Gender
All
Age
18 Years to 110 Years
Inclusion criteria
Inclusion criteria: 1. Aged 18 years or older (peers and volunteer coaches) 2. Attendance at one of three outpatient clinics (rheumatology, pain and multiple sclerosis) in TSDFT (peers and volunteer coaches) 3. PAM Level 1 or 2 (peers), PAM 3 or 4 (volunteer coaches) 4. Willing and able to engage in the six-month intervention (peers and volunteer coaches) 5. Willing and able to commit to undertaking assessments at baseline, six and nine months (peers). 6. Capacity to provide informed consent (peers and volunteer coaches) 7. Sufficient fluency in English to be able to engage with the intervention and study material (peers and volunteer coaches)
Exclusion criteria
Exclusion criteria: 1. Aged under 18 years 2. Potential peers scoring PAM 3 or 4 3. Potential volunteer coaches scoring PAM 1 or 2 4. Participation in another observational/ interventional research trial 5. Not able to commit to six-month intervention period 6. Not able to provide informed consent 7. Insufficient fluency in English to engage with intervention/ study material
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Feasibility outcomes: 1.1. Peer recruitment rate (%) = number of peers recruited/ potentially eligible cohort (indicated by the number of information packs sent or handed out) x100 1.2. Coach recruitment rate (%) = number of volunteer coaches recruited/ potentially eligible cohort (indicated by the number of information packs sent or handed out) x100 1.3. Retention rates will be calculated as the proportion of peers completing all questionnaires at 6 months i.e. the end of the coaching intervention. Follow-up rates will be calculated as the proportion of peers completing all questionnaires at 9 months. 1.4. Coach retention will be calculated as the proportion of coaches who complete the training programme and coaching of (at least) one peer | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Patient Activation is measured using the Patient Activation Measure (PAM®) at baseline, six and nine months. 2. Mental wellbeing is measured using the Warwick Edinburgh Mental Wellbeing Scale at baseline, six and nine months. 3. General health status and quality of life is measured using the SF-36 at baseline, six and nine months. 4. Health confidence is measured using the Health Confidence Score at baseline, six and nine months. 5. The impact of Long-term conditions, experience of services and support, and self-care is measured using the Long Term Conditions Questionnaire at baseline, six and nine months. 6. Health service utilisation is measured using a bespoke resource use questionnaire at baseline, six and nine months. 7. Specific symptoms, depending on diagnosis are measured with one of the following questionnaires at baseline, six and nine months: Brief Pain Inventory;Multiple Sclerosis Impact Scale;The EULAR Psoriatic Arthritis Impact of Disease: PsAID9 for clinical trials ; The Bath AS Disease Activity Index (BASDAI); Rheumatoid Arthritis Impact of Disease (RAID) questionnaire 8. Qualitative - we will gather the views of participants about the intervention and participation in the study via semi-structured interviews at the end of the intervention period | — |
Countries
England, United Kingdom
Contacts
Public ContactRachel Dennett
Outcome results
None listed