The well-being of carers of people with dementia Other
Conditions
Interventions
Participants will be randomised by a computer generated randomisation scheme on an individual participant level (1:1) stratified by site. They will be allocated to the CareCoach intervention group or
Sponsors
University of Exeter
Eligibility
Sex/Gender
All
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: 1. Aged 18 years old or above 2. Spoken understanding of the English language (with the help of family translators if required) 3. Currently caring for a person with dementia (all subtypes, diagnosed within the last 5 years) 4. Has a first-degree relationship (spouse/partner, sibling, son or daughter) with a person with dementia; OR must have a close personal relationship with a person with dementia (e.g. in-law family member, close friend or neighbour) 5. Has capacity to give informed consent to participate; 6. Has access to the internet (via a home computer/laptop, iPad/tablet or mobile phone with internet capability)
Exclusion criteria
Exclusion criteria: 1. Potential participants with insufficient cognitive abilities to engage in the online programme 2. Overburdened, as determined by study staff. 3. If the person with dementia they care for currently resides in a care home
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The recruitment rate will be recorded as the number of eligible participants who consented to participate in the study over the 6 month recruitment period. 2. The attrition rate will be recorded as the number of eligible participants who consented to participate in the study but had not completed the final 6 month follow-up measures. | — |
Secondary
| Measure | Time frame |
|---|---|
| Measured at baseline and 6 months: 1. The Caregiver Self-Efficacy Scale (CSES) 2. The Pearlin Mastery Scale (PMS) 3. The Perceived Stress Scale (PSS) 4. The Centre for Epidemiological Studies Depression scale (CES-D) 5. The Generalised Anxiety Disorder 7-item scale (GAD-7) 6. Scale measuring the Impact of DEmentia on CARers (SIDECAR-D) 7. Modified Client Service Receipt Inventory (CSRI) 8. EuroQol Health Related Quality of Life (EQ-5D-5L) 9. Patient Health Questionnaire (PHQ-9). 10. The Goal Attainment Scaling (GAS, intervention only) Carer proxy rating of the person with Dementia: 11. Neuropsychiatric Inventory (NPI-Q) 12. Proxy EuroQol Health Related Quality of Life (EQ-5D-5L) 13. A small subset of participants will be interviewed and qualitative data will assess whether the intervention is perceived as acceptable to participants. | — |
Countries
England, United Kingdom, Wales
Contacts
Public ContactHelen Morse
Outcome results
None listed