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CATCh-uS ADHD in transition study: Understanding mental health services provided to young people with ADHD in the UK and Ireland as they move from childhood to adulthood

Children with Attention Deficit Hyperactivity Disorder (ADHD) in transition from children’s services to adult services: a mixed methods project using national surveillance, qualitative and mapping studies

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ISRCTN
Registry ID
ISRCTN12492022
Enrollment
1
Registered
2020-02-03
Start date
2015-12-01
Completion date
Unknown
Last updated
2023-04-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Attention deficit hyperactivity disorder Mental and Behavioural Disorders

Interventions

Level of need: Surveillance Study and electronic case note survey To assess ongoing service needs, we collected surveillance data via the Child and Adolescent Psychiatry Surveillance S

Sponsors

University of Exeter Research Ethics and Governance
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: For the surveillance study: 1. Consultant child and adolescent psychiatrists and paediatricians registered with the BPSU and CAPSS For the mapping study: 2. Practitioners (child and adult services) working with young people with ADHD 3. Mental health service commissioners 4. Patients with ADHD 5. Carers of young people with ADHD For the qualitative study: 6. Healthcare professionals working in secondary healthcare for children or adult mental health services, i.e. those working in child mental health, adult mental health, paediatrics or primary care who had experience of working with young people who had ADHD and required ongoing services into adulthood and therefore transition 7. General practitioners (GPs) 7. Parents of children with ADHD 8. Young people with ADHD pre-transition, i.e. aged 14 to 16 years and attending CAMHS 9. Young people with ADHD post-transition, i.e. aged 18 or over and transitioned straight from children’s services without a break in service 10. Young people with ADHD who dropped out of CAMHS and re-engaged with adult mental health services, i.e. aged 18 years or over and had re-entered services with a gap in service contact for at least 1 year

Exclusion criteria

Exclusion criteria: For the surveillance study: 1. Patients not willing or able to take medication for ADHD For the qualitative study: 2. Potential participants who the managing clinician thought it inappropriate for the research nurse to make contact with because of clinical severity, safeguarding or risk to others

Design outcomes

Primary

MeasureTime frame
Surveillance study: 1. Need for transition quantified as the rate per 100,000 17- to 19-year-olds

Secondary

MeasureTime frame
Surveillance study: 1. Successful transition quantified as the rate of attendance at at least one appointment by 9-month follow up per 100,1000 17- to 19-year-olds 2. Quality of transition assessed using a questionnaire baseline and 9 months later Mapping: 3. Reports of services for adults with ADHD (known about and experience of) assessed via bespoke online questionnaire at a single timepoint per participant Qualitative survey: 4. Optimal transition assessed using semi-structured interviews at a single timepoint per participant using a topic guide to ensure all salient areas were covered

Countries

England, Ireland, United Kingdom

Contacts

Public ContactTamsin Ford
catchus@exeter.ac.uk44 1392 726083

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 17, 2026