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Exploring the implementation of new autistic-led standards in residential and supported living for autistic adults

Developing and applying new autistic-led standards for social care environments: a participatory action research study of Ethical Quality Autistic Led Support

Status
Recruiting
Phases
Unknown
Study type
Interventional
Source
ISRCTN
Registry ID
ISRCTN12256307
Enrollment
17
Registered
2026-03-06
Start date
2026-03-16
Completion date
Unknown
Last updated
2026-03-16

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autism Mental and Behavioural Disorders

Interventions

Three participatory action groups are expected to run on a monthly basis, and culminate in whole-service reflection. These action groups are designed to implement the National Autistic Taskforce servi

Sponsors

University of Sussex
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to 100 Years

Inclusion criteria

Inclusion criteria: People using services: 1. Autistic adults, including those who do not use speech, have co-occurring learning disabilities, or require intensive support 2. Aged 18+ years 3. Living in one of the two participating residential or supported living services Staff employed at either of the participating services, including support workers, senior support workers, team leaders and managers Family members or close friends who visit or remain regularly involved in the life of an autistic adult living in the service

Exclusion criteria

Exclusion criteria: 1. Individuals who are not within one of the key participant categories (i.e. who are not autistic residents, support staff or managers employed by participating services, or family members / close friends with an ongoing relationship to a resident) 2. Individuals with a direct supervisory or governance role over the research project (e.g. steering committee or advisory group members), in order to avoid conflicts of interest

Countries

England, United Kingdom

Contacts

Public ContactSue Fletcher-Watson
sue.fletcher-watson@ed.ac.uk+44 131 651 3083

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Mar 20, 2026