Post-diagnostic support for people with dementia (typically early stages) Mental and Behavioural Disorders
Conditions
Interventions
This study is a Realist Evaluation, a theory-driven approach to evaluating what works, for whom, in what circumstances, how and why regarding offering food or activities involving food within communit
Sponsors
University of Worcester
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: For interviews at our six community group case studies (Work Package 2), participants will: 1. Have involvement with and/or first-hand knowledge and experience of food and food-related practices at one of the community groups being studied 2. Occupy one of the following roles: 2.1. A community group attendee living with dementia 2.2. A person informally supporting a community group attendee living with dementia (e.g. family member or friend) 2.3. A member of paid staff at the community group 2.4. An unpaid volunteer helping at the community group 2.5. A person organising or involved with governance/planning of the community group For individual participant-led interviews about the role of food in people's lives (Work Package 3), participants will: 1. Have involvement with and/or first-hand knowledge and experience of food and food-related practices at a community group 2. Agree to participate as either: 2.1. A community group attendee living with dementia 2.2. A dyad of a community group attendee living with dementia and a person informally supporting them (e.g. family member or friend)
Exclusion criteria
Exclusion criteria: Participants will be excluded if: 1. They have never attended nor had involvement with community group support 2. They do not have the capacity to take part in interviews or discussions 3. They refuse consent or request to be withdrawn from the study after they have done so 4. A personal consultee advises against their participation on their behalf 5. They show signs of negative attitude, discomfort or upset, or of not wishing to take part, when explaining the study and study processes, or before or during interview or discussion
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| A mixture of observation sessions and semi-structured interviews, as well as via participant-led interviews will be analysed using a Realist logic of analysis to understand what works, for whom, in what circumstances, how and why regarding the benefits and challenges of offering food or activities involving food within community group support for people affected by dementia | — |
Secondary
| Measure | Time frame |
|---|---|
| One work package within this study (Work Package 3) will also use observation sessions and semi-structured interviews, as well as participant-led interviews to seek to understand the role and experience of food, eating and food-related activities in the lives of individuals living with dementia in general, to produce case study examples to further inform the learning from the study as a whole | — |
Countries
England, United Kingdom
Contacts
Public ContactThomas Morton
Outcome results
None listed