Dementia Mental and Behavioural Disorders
Conditions
Interventions
The intervention is manualised and delivered in up to eight face-face sessions up to a 6-month period followed by fortnightly to monthly telephone follow-ups. Face-to-face sessions will be offered wee
Sponsors
University College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: People with dementia: 1. People with a documented diagnosis of dementia of any severity who are living in their own homes (including sheltered accommodation, where staff are not on site 24 hours a day) alone or with others 2. people with dementia who have a family carer willing to participate in the study Family carers: 3. In regular (at least weekly face-to-face or telephone contact) with the person with dementia 4. Can speak English sufficiently well to participate in the intervention
Exclusion criteria
Exclusion criteria: 1. People living with dementia who are receiving palliative care support and considered to be in the last 6 months of their life. 2. Family carers who lack capacity to consent 3. Currently enrolled in another intervention trial/research study 4. Unable to identify three or more goals
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Functioning of the person with dementia assessed using family carer-rated Goal Attainment Scaling (GAS) at 12 months. The GAS questionnaire is valid, reliable and responsive to change in function in people with dementia living at home up to 12 months. Trained researchers will work with family carers and people with dementia to set SMART (Specific, Measurable, Achievable, Realistic and Timely) goals across domains of: cognition, instrumental activities of daily life/self-care, mood, behaviour and mobility. Family carers will evaluate ‘performance’ on a minimum of three and maximum of five goals set at baseline, on a 5-point scale ranging from 'much worse' to 'much better' than expected. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Researcher-assessed rating of achievement of goals assessed using Goal Attainment Scaling questionnaire at 12-month follow-up 2. Functional independence (basic and instrumental activities of daily living) assessed by the carer using the Disability Assessment for Dementia scale at 12-month follow-up 2. Quality of life of the person with dementia assessed by the carer using the DEMQOL proxy scale at 12-month follow-up 3. Neuropsychiatric symptom severity assessed by the carer using the Neuropsychiatric Inventory-Questionnaire at 12-month follow-up 4. Carer's quality of life using the CarerQol scale at 12-month follow-up 5. Apathy assessed by the carer using the brief Dimensional Apathy Scale at 12-month follow-up 6. Carer's anxiety and depression assessed using the Hospital Anxiety and Depression Scale at 12-month follow-up 7. Potentially abusive behaviours assessed using the Modified Conflict Tactics Scale at 12-month follow-up 8. Services and support received by the person with dementia assessed using the Client Services Receipt Inventory (CSRI) including home care, hospitalisations, respite and all-cause time to transition from home 12-month follow-up. 9. Achievement of goals assessed by the person with dementia (if they are able) using Goal Attainment Scaling before and after the intervention 10. Quality of life of the person with dementia assessed by the person themselves (if they are able) using the DEMQOL scale before and after the intervention | — |
Countries
England, United Kingdom
Contacts
Public ContactJessica Budgett
Outcome results
None listed