Intellectual disability Mental and Behavioural Disorders
Conditions
Interventions
When consent and baseline measures have been collected for all participants within each family, the family will be randomised to E-PAtS and UP or UP and waitlist control. Participating families will b
Sponsors
University of Kent
University of Birmingham
Eligibility
Sex/Gender
All
Age
0 Months to 7 Years
Inclusion criteria
Inclusion criteria: Current inclusion criteria as of 15/07/2026: First parent/caregiver: 1. With at least one child with an ID aged 0 months to 7 years 2. The identified child with ID meets the following: 3.1. Has a diagnosis or in process of exploring a diagnosis or presentation related to intellectual and/or developmental disability – including but not restricted to Learning Disability, Global Developmental Delay, Autism, Pervasive Developmental Delay or Special Educational Needs AND 3.2. Has a standard composite score on the Domain-level version of the Vineland Adaptive Behaviour Scales III Domain Version of <80 4. Available to attend the E-PAtS intervention 5. =18 years old 6. Has sufficient level of English language enabling (verbal) completion of outcome measures 7. Able to provide informed consent Second parent/caregiver: 1. =18 years old 2. Have sufficient level of English language enabling (verbal) completion of outcome measures 3. Has at least weekly contact with the identified child with ID 4. Able to provide informed consent Previous inclusion criteria: First parent/caregiver: 1. With at least one child with an ID aged 18 months to 6 years 2. The identified child with ID meets the following: 3.1. Has a diagnosis or in process of exploring a diagnosis or presentation related to intellectual and/or developmental disability – including but not restricted to Learning Disability, Global Developmental Delay, Autism, Pervasive Developmental Delay or Special Educational Needs AND 3.2. Has a standard composite score on the Domain-level version of the Vineland Adaptive Behaviour Scales III Domain Version of <80 4. Available to attend the E-PAtS intervention 5. =18 years old 6. Has sufficient level of English language enabling (verbal) completion of outcome measures 7. Able to provide informed consent Second parent/caregiver: 1. =18 years old 2. Have sufficient level of English language enabling (verbal) completion of outcome measures 3. Has at least weekly contact with the identified child with ID 4. Able to provide informed consent
Exclusion criteria
Exclusion criteria: First parent/caregiver: 1. The identified child with ID is in a 24hr residential placement 2. The identified child with ID is in a foster placement due to end before the 12-month post-randomisation follow-up data collection point 3. Parent/caregiver enrolled at baseline in a group or individually-delivered parenting programme outside of the study 4. Parent/caregiver enrolled in a programme of personal psychological therapeutic support at baseline 5. Parent/caregiver in the family has already participated in an E-PAtS group 6. There are current child protection concerns relating to the identified child with ID that have been identified by professionals/services and indicated to programme facilitators or their host organisation at the point of recruitment 7. The family are recognised to be in a state of current crisis and unable to cope/a score of 8-10 on the 10-point Brief Family Distress Scale Second parent/caregiver: 1. Enrolled at baseline in a group or individually delivered parenting programme outside of the study 2. Enrolled in a programme of personal psychological therapeutic support at baseline 3. Has already participated in an E-PAtS group
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Warwick-Edinburgh Mental Well-Being Scale to measure parental/caregivers mental wellbeing (38) at 12 months post-randomisation. Measured at baseline, months 4 and 12 post randomisation. | — |
Secondary
| Measure | Time frame |
|---|---|
| Parents/Caregivers: 1. Perceptions of parenting: 7 efficacy subscale items from the Parenting Sense of Competence Scale; Measured at baseline, months 4 and 12 post randomisation 2. Parental/caregiver anxiety and depression: Hospital Anxiety and Depression scale; Measured at baseline, months 4 and 12 post randomisation Children: 1. Adaptive development: The GO4KIDDS Brief Adaptive Scale adapted to include an additional communication item; Measured at baseline, months 4 and 12 post randomisation 2. The Strengths and Difficulties Questionnaire (completed by parents/caregivers of children 2 years and above); Measured at baseline, months 4 and 12 post randomisation 3. Single Sleep question from Millennium Cohort Survey Measured at baseline, months 4 and 12 post randomisation Families: 1. Family functioning: Family APGAR scale; Measured at baseline, months 4 and 12 post randomisation Support: 1. Support for family: Family Support Scale. Measured at baseline, months 4 and 12 post randomisation The health economics evaluation will utilise: 1. Parent health-related quality of life (EQ-5D-5L; Measured at baseline, months 4 and 12 post randomisation 2. Client Service Receipt Inventory (CSRI) [Feasibility study] modified. Measured at baseline, months 4 and 12 post randomisation | — |
Countries
England, Northern Ireland, United Kingdom, Wales
Contacts
Public ContactRhys Williams-Thomas
Outcome results
None listed