Narrative Experiences Online (NEON): impact of recorded mental health recovery stories on quality of life in people experiencing psychosis

Conditions

Mental health Mental and Behavioural Disorders

Mike Slade, Stefan Rennick‐Egglestone, Yasmin Ali, Chris Newby, Caroline Fox et al. (29 authors)

Programme Grants for Applied Research2025-09-01

Effectiveness and cost-effectiveness of online recorded recovery narratives in improving quality of life for people with psychosis experience (NEON Trial): a pragmatic randomised controlled trial.

Slade M, Rennick-Egglestone S, Robinson C, Newby C, Elliott RA, Ali Y, Yeo C, Glover T, Gavan SP, Paterson L, Pollock K, Priebe S, Thornicroft G, Keppens J, Smuk M, Franklin D, Walcott R, Harrison J, Robotham D, Bradstreet S, Gillard S, Cuijpers P, Farkas M, Ben-Zeev D, Repper J, Kotera Y, Roe J, Llewellyn-Beardsley J, Ng F.

2024-10-234 citations

10.1016/j.lanepe.2024.101101

Perception and appropriation of a web-based recovery narratives intervention: qualitative interview study

Yasmin Ali, Stefan Rennick‐Egglestone, Joy Llewellyn‐Beardsley, Fiona Ng, Caroline Yeo et al. (10 authors)

Frontiers in Digital Health2024-02-142 citations

10.3389/fdgth.2024.1297935

Statistical analysis plans for two randomised controlled trials of the Narrative Experiences Online (NEON) Intervention: impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis (NEON) and people experiencing non-psychosis mental health problems (NEON-O).

Robinson C, Newby C, Rennick-Egglestone S, Llewellyn-Beardsley J, Ng F, Elliott RA, Slade M.

2023-05-206 citations

10.1186/s13063-023-07246-8

Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention

Luke Paterson, Stefan Rennick‐Egglestone, Sean P. Gavan, Mike Slade, Fiona Ng et al. (12 authors)

Frontiers in Psychiatry2022-11-077 citations

10.3389/fpsyt.2022.1028156

Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing non-psychosis mental health problems (NEON-O Trial): updated randomised controlled trial protocol.

Rennick-Egglestone S, Elliott R, Newby C, Robinson C, Slade M.

2022-01-299 citations

10.1186/s13063-022-06027-z

Opportunities, Enablers, and Barriers to the Use of Recorded Recovery Narratives in Clinical Settings

James Roe, Susan Brown, Caroline Yeo, Stefan Rennick‐Egglestone, Julie Repper et al. (13 authors)

Frontiers in Psychiatry2020-10-3022 citations

10.3389/fpsyt.2020.589731

Impact of receiving recorded mental health recovery narratives on quality of life in people experiencing psychosis, people experiencing other mental health problems and for informal carers: Narrative Experiences Online (NEON) study protocol for three randomised controlled trials.

Rennick-Egglestone S, Elliott R, Smuk M, Robinson C, Bailey S, Smith R, Keppens J, Hussain H, Pollock K, Cuijpers P, Llewellyn-Beardsley J, Ng F, Yeo C, Roe J, Hui A, van der Krieke L, Walcott R, Slade M.

2020-07-2027 citations

10.1186/s13063-020-04428-6

Post-traumatic growth in mental health recovery: qualitative study of narratives

Mike Slade, Stefan Rennick‐Egglestone, Laura E. R. Blackie, Joy Llewellyn‐Beardsley, Donna Franklin et al. (13 authors)

BMJ Open2019-06-0194 citations

10.1136/bmjopen-2019-029342

Interventions

Current interventions as of 12/11/2019: Equal allocation across arms: Arm 1: treatment as usual plus access to online recovery narratives for one year Arm 2: treatment as usual for one year, followed

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Current inclusion criteria as of 12/11/2019: 1. Experience of psychosis in the last five years 2. Experience of mental health-related distress in the previous 6 months 3. Resident in England 4. Aged 18 years or above 5. Capable of accessing or being supported to access the internet, either on a personal computer, mobile device or at a community venue 6. Able to understand written and spoken English 7. Capable of providing online informed consent 8. Any gender Previous inclusion criteria: 1. Aged 18-65 2. Any gender 3. Primary or secondary clinical diagnosis of psychosis (including e.g. schizophrenia, schizoaffective disorder, bipolar disorder) 4. Currently using mental health services in England 5. Able to understand English 6. Able to access or be supported to access the internet 7. Able to give online informed consent

Exclusion criteria

Exclusion criteria: Does not meet inclusion criteria

Design outcomes

Primary

Measure	Time frame
Current primary outcome measure as of 12/11/2019: Health-related quality of life assessed using the Manchester Short Assessment (MANSA) at 1 week, 12 weeks and 52 weeks (primary endpoint) after baseline Previous primary outcome measure: Health-related quality of life assessed using the Manchester Short Assessment (MANSA) at 1 week, 3 months and 1 year after baseline	—

Secondary

Measure	Time frame
Current secondary outcome measures as of 12/11/2019: Assessed at 1 week, 12 weeks and 52 weeks after baseline: 1. Hope assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in Life assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology assessed through CORE-10 (Barkham et al, 2013) Previous secondary outcome measures: Assessed at 1 week, 3 months and 1 year after baseline: 1. Hope assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in life assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology assessed through a standardised measure (to be determined) 5. Quality of social relationships assessed through a non-standardised scale to be developed within the NEON study	—

Measure

Time frame

Current secondary outcome measures as of 12/11/2019: Assessed at 1 week, 12 weeks and 52 weeks after baseline: 1. Hope assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in Life assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology assessed through CORE-10 (Barkham et al, 2013) Previous secondary outcome measures: Assessed at 1 week, 3 months and 1 year after baseline: 1. Hope assessed through the Herth Hope Index (Herth, 1992) 2. Meaning in life assessed through the Meaning in Life Questionnaire (Steger et al, 2006) 3. Empowerment assessed through the Mental Health Confidence Scale (Carpinello et al, 2000) 4. Symptomatology assessed through a standardised measure (to be determined) 5. Quality of social relationships assessed through a non-standardised scale to be developed within the NEON study

—

Countries

England, United Kingdom

Outcome results

None listed