Social care for people living with young onset dementia and their families Mental and Behavioural Disorders
Conditions
Interventions
The DYNAMIC study involves three work packages. The first two will run in parallel over 15-16 months and be followed by the third over the subsequent 15 months.
In work package 1, the project will ga
Sponsors
University of Bradford
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: Work package 1 participants will be people with YOD and main supporters: 1. Living in England. 2. Diagnosed with YOD or a relative, friend or neighbour of someone diagnosed with YOD 3. Living alone or with others Work package 2 participants will be staff with a role in or awareness of adult/older adult social care planning, provision, management or commissioning, including but not limited to: 1. Local authority social workers 2. Local authority community OTs 3. Local authority social services commissioners, managers and coordinators 4. Social prescribers from third sector and primary care organisations 5. Staff from third-sector organisations that provide community and/or residential services, e.g., dementia navigators or link workers, Young Onset Dementia Advisors, support group facilitators 6. Staff from private providers e.g. home carers, personal assistants, care home staff and managers
Exclusion criteria
Exclusion criteria: People with young onset dementia will be excluded if: 1. They are diagnosed with dementia caused by HIV, traumatic brain injury, Down’s syndrome, Huntington’s chorea or alcohol-related dementia 2. They are unable to communicate or lack capacity to consent to take part
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Experiences of social care for young onset dementia and areas for improvement established through thematic analysis and descriptive data measured by interview at a single time point | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactHelen Young
Outcome results
None listed