People with myalgic encephalomyelitis and long COVID using pacing with a heart rate monitor Circulatory System
Conditions
Interventions
On the day of the assessment (arranged to fit into the schedule of the participant), they will be asked to fill out the consent form and three questionnaires (which can be completed in their own time
Sponsors
University of Liverpool
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. The International Consensus Criteria for Myalgic Encephalomyelitis will be used for people with ME and the presence of post-exertional malaise (PEM) will be part of the inclusion criteria for people with long COVID 2. People with different severities of ME will be recruited ranging from mild to moderate ME
Exclusion criteria
Exclusion criteria: 1. People with severe and very severe ME 2. People who are already using pacing with a heart rate monitor 3. People with long COVID without PEM
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Activity levels measured either with a HRV monitor (firstbeat) or an actigraph accelerometer at baseline and at 8 weeks | — |
Secondary
| Measure | Time frame |
|---|---|
| Measured at baseline and at 8 weeks: 1. Blood pressure measured with a sphygmomanometer 2. Lactic acid measured with a lactic acid monitor - Lactate Pro2 3. Heart rate and oxygen levels measured with a pulse oximeter 4. Good day/Bad day questionnaire 5. Depaul SQ - SF questionnaire (ME and CFS symptomatology) 6. PROMIS SF - Physical function questionnaire 7. PROMIS SF - Fatigue questionnaire | — |
Countries
England, United Kingdom
Outcome results
None listed