Post-diagnostic support for people with dementia (typically early stages) Mental and Behavioural Disorders Unspecified dementia
Conditions
Interventions
This study is a Realist Evaluation, a theory-driven approach to evaluating what works, for whom, in what circumstances, how and why regarding the sustainability of Meeting Centres for people affected
Sponsors
University of Worcester
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: For interviews and focus groups at the three Meeting Centre (MC) case studies, participants will: 1. Have involvement with, and first-hand knowledge and experience of, one of the three MCs being studied 2. Occupy one of the following roles: 2.1. An attendee living with dementia 2.2. An attendee informally supporting a person living with dementia (e.g. family member or friend) 2.3. A member of paid staff 2.4. An unpaid volunteer helping to run the MC 2.5. A person overseeing governance/strategic planning at the MC 2.6. A health or social care professional (including third sector) involved in the MC’s local dementia pathway 2.7. A community stakeholder supporting the MC or involved with the local dementia strategy For the Discrete Choice Experiment survey, participants will: 1. Be either living with dementia or supporting an attendee who is living with dementia 2. Have attended an MC in the UK
Exclusion criteria
Exclusion criteria: Participants will be excluded if: 1. They have never attended nor had involvement with an MC 2. They do not have the capacity to take part in interviews or discussions, or to follow the questionnaire 3. They refuse consent or request to be withdrawn from the study after they have done so 4. A personal consultee advises against their participation on their behalf 5. They shows signs of negative attitude, discomfort or upset, or of not wishing to take part, when explaining the study and study processes, or before or during interview or group discussion/questionnaire completion
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| This study is not an interventional trial and does not focus upon specific outcome measures. The data gathered will be qualitative in the main and analysed using a combination of Soft Systems Methodology modelling and Realist logic of analysis. Topics upon which qualitative evidence will be gathered will include: 1. Soft Systems "BATWOE" categories: 1.1. Beneficiaries (who is the system aimed at helping, e.g. people living with dementia and those that support them) 1.2. Actors (people’s roles and functions in the system, e.g. staff, volunteers, governors, referrers, social care professionals, community stakeholders) 1.3. Transformations (i.e. going from start-up MC to established MC to stable and thriving MC) 1.4. Worldview (e.g. how do things work regarding sustainability, what are the challenges and what should be done?) 1.5. Ownerships (i.e. who or what can influence or thwart the success of an MC) 1.6. Environment (i.e. what are the background contextual factors that could boost or constrain success?) 2. The theory of factors involved in the sustainability of community-based interventions developed in the SCI-Dem Realist Review, including: 2.1. Funding: sources, length and ease of obtaining 2.2. Venue: type, location, facilities and transport links 2.3. Staff and volunteers: finding, recruiting and retaining the right people with the right skills in the right balance 2.4. Membership: finding and recruiting attendees, engaging referrers, and overcoming stigma and anxiety barriers 2.5. The network of support with other local organisations and services, including partnership working and referrers 2.6. Relationships between attendees and those that support them (e.g. family, friends and other informal carers), and how these are r | — |
Secondary
| Measure | Time frame |
|---|---|
| The priorities, preferences and willingness to pay for the various elements of the Meeting Centre offer will be measured and analysed using a Discrete Choice Experiment questionnaire, a flexible health economics survey tool, which is planned to run from October 2021 to March 2022 | — |
Countries
England, United Kingdom, Wales
Contacts
Public ContactThomas Morton
Outcome results
None listed