Post-diagnostic support for autistic adults Mental and Behavioural Disorders
Conditions
Interventions
Autistic participants will be recruited via information sheets provided to them at their diagnostic appointments in three clinical settings. Autistic participants will follow these steps:
1. After rea
Sponsors
Sheffield Health and Social Care NHS Foundation Trust
Eligibility
Sex/Gender
All
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: 1. Adults (18 years and older). 2. Diagnosed with autism at one of the 3 study sites during the duration of the study data collection period. 3. No diagnosis of a co-occurring learning disability. 4. English speaker with adequate language proficiency to complete the Strengths and Needs assessment. 5. Clinicians at the 3 study sites who are involved in the study (i.e., clinicians who provide information about the study to potential participants, and study site leads).
Exclusion criteria
Exclusion criteria: 1. Aged 17 years or younger. 2. Participants with no formal diagnosis of autism. 3. Participants who received their diagnosis before the period of the study or from another diagnostic service. 4. Unable to consent or to complete the Strengths and Needs assessment. 5. Participants who have a diagnosis of a co-occurring learning disability.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome measures will be the acceptability and feasibility of the Strengths and Needs Assessment. These will be measured immediately following completion of the Strengths and Needs Assessment at baseline and will be completed by the Intervention group only. 1.Acceptability of the Strengths and Needs Assessment will be measured using one item from the Theoretical Framework of Acceptability. 2.Usability of the assessment will be measured using the System Usability Scale total score. Feasibility of study procedures will be measured for both groups (Intervention and Treatment as Usual) using participant eligibility rates; recruitment rates; attrition; and reporting of any potential benefits and harms. This will be supplemented with qualitative feedback from semi-structured interviews with a sub-sample of autistic participants and focus groups of clinicians. | — |
Secondary
| Measure | Time frame |
|---|---|
| The following secondary outcome measures are mental health and quality of life measures that are assessed at baseline and 3-month follow-up: 1. The EuroQol 5-level EQ-5D (EQ-5D-5L) is a widely used tool to measure health-related quality of life (HRQoL). It assesses individuals' perceptions of their health status across five dimensions: mobility, self-care, usual activities, pain/discomfort, and anxiety/depression. 2. The PHQ-9 (Patient Health Questionnaire-9) is a widely used self-report questionnaire designed to assess the severity of depression symptoms. It is a brief, nine-item tool that asks individuals to rate the frequency of various depressive symptoms they have experienced in the past two weeks. 3. The GAD-7 (Generalized Anxiety Disorder 7-item scale) is a widely used self-report questionnaire designed to screen for and assess the severity of generalized anxiety disorder (GAD). 4. The ReQoL-10 (Recovering Quality of Life-10) is a self-report questionnaire designed to measure individuals' perceptions of their mental health recovery. It focuses on key aspects of recovery, such as hope, connectedness, and personal growth. | — |
Countries
England, United Kingdom
Contacts
Public ContactMarianne Day
Outcome results
None listed