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Pharmacogenetics to avoid loss of hearing UK

Pharmacogenetics to avoid loss of hearing UK

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ISRCTN
Registry ID
ISRCTN10216938
Enrollment
5550
Registered
2026-03-02
Start date
2025-01-13
Completion date
Unknown
Last updated
2026-03-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Use of a genetic test to detect the m.1555A>G variant associated with aminoglycoside-induced hearing loss in neonatal care units Neonatal Diseases

Interventions

This study involves a genetic test to detect the m.1555A>G variant associated with aminoglycoside-induced hearing loss. All babies admitted to the participating neonatal care units during the study pe

Sponsors

University of Manchester
Lead Sponsor

Eligibility

Sex/Gender
All
Age
0 Days to 5 Years

Inclusion criteria

Inclusion criteria: All babies admitted to a study site for the defined trial period commencing from the trial start date

Exclusion criteria

Exclusion criteria: Babies requiring antibiotics immediately on admission with already established IV access, where the clinical risk of waiting for the m.1555A>G result is considered, by the attending clinician, to be too great

Design outcomes

Primary

MeasureTime frame
The number of neonates who are successfully tested for the m. 1555A>G genetic variant out of all babies given antibiotics measured using genetic testing data on admission or assessment at the participating sites

Secondary

MeasureTime frame
1. The total number of neonates identified with the m. 1555A>G genetic variant, measured using retrospective data collection from the device at the end of the study period 2. The frequency of different antibiotic regimens used, measured using data recorded during the collection periods, will be summarised by descriptive statistics, across the whole study and by site at the end of the study period. The antibiotic used for any baby positive for the m.1555A>G variant will also be reported. 3. Average time from admission to antibiotic administration for all participants tested throughout the study period, across all sites, measured using aggregate data collection at the end of the study period 4. Total number of incidences where time to antibiotic administration exceeds the 60-minute target and the reasons for these, measured using patient medical notes and real-time data collection at the end of the study period 5. Total number of assay failures within the testing period and whether this varies based on geography and/or site size, and the reasons for these, measured using retrospective data collection from the device at the end of the study period 6. Total number of babies where testing was not undertaken during the 6-month testing period and the reasons for these, measured using patient medical notes and real-time data collection at the end of the study period 7. Diagnostic accuracy measured using Sanger sequencing to assess sensitivity, specificity, accuracy, positive predictive value, and negative predictive values at the end of the study 8. Ethnicity measured using self-reported ethnicity data at the end of the study

Countries

England, Northern Ireland, Scotland, United Kingdom, Wales

Contacts

Public ContactSian Hilton
Sian.Hilton@mft.nhs.uk+44 (0)7977741953

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Apr 4, 2026