Primary progressive aphasia Mental and Behavioural Disorders Unspecified dementia
Conditions
Interventions
A series of video-recorded focus groups will be conducted with people with PPA and their CPs to gather information on what they feel should be included in the Better Conversations with PPA (BCPPA) pro
Sponsors
University College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Pilot study: 1. Have a diagnosis or possible diagnosis of PPA 2. Have some ability to communicate and understand communication in order to participate in the BCPPA program 3. Are able to see and hear well enough to participate in the BCPPA program 4. Are functionally able to engage in the BCPPA program (i.e. able to maintain some concentration and remain in a 60-90 minute session, minimal challenging behaviour that would be unlikely to cause disruption) 5. English as their language of daily use 6. Have a conversation partner (CP) who is able to and consents to participating in the project
Exclusion criteria
Exclusion criteria: Focus group: 1. History of brain lesions or major head trauma 2. Major physical illness or disability which could impact on participation Pilot study: 1. History of brain lesions or major head trauma 2. Major physical illness or disability which could impact on participation 3. Major psychiatric diagnosis 4. Prominent behavioural disturbance 5. Prominent episodic memory, visual memory or visuoperceptual impairments
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of life is measured using the Dementia Quality of Life Measure (DEMQOL) (Mulhern et al, 2013) pre-treatment (week 1) and post-treatment (week 6) | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Language is measured using the Comprehensive Aphasia Test (Swinburn et al, 2004) pre-treatment (week 1) and post-treatment (week 6) 2. Communication is measured using conversation samples; four video recordings of a 10-15 minute conversation, pre-treatment (week 1) and post-treatment (week 6) 3. Quality of life is also measured pre-treatment (week 1) and post-treatment (week 6) using the following: 3.1. The Aphasia Impact Questionnaire (Swinburn, Connect Press) 3.2. Communication Confidence Rating Scale for Aphasia (CCRSA) (Babbitt et al, 2011) 3.3. Perceived Stress Scale (Cohen et al, 1983)? (completed by Conversation Partner only) 3.4. Zarit burden interview (Zarit, Orr, and Zarit 1985) (completed by Conversation Partner only) | — |
Countries
England, United Kingdom
Outcome results
None listed