Specialty: Dementias and neurodegeneration, Primary sub-specialty: Dementia
Conditions
Interventions
The study uses a prospective, non-randomised feasibility design to investigate the level of uptake of DemPower among couples where one partner has a diagnosis of dementia. A set of outcome measures an
writing reflections, discussing emotions, needs and required changes to their home and their approach to daily life.
On completion of baseline assessments, the tablets with preloaded
Sponsors
The University of Manchester
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Couples who have a partner/spouse with a diagnosis of dementia 2. Couples who live together in ordinary housing (not residential care) 3. Both partners understand and speak English (in the UK) or Swedish (in Sweden) 4. Couples in a long term relationship for two years or more
Exclusion criteria
Exclusion criteria: 1. One or both partners are blind 2. Any partner who has become completely immobile or bed bound 3. Both partners have a diagnosis of dementia 4. Couples where one or both partners lack capacity or may have fluctuating capacity
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Feasibility is measured through a set of evaluation questionnaires designed by the study team. Participants are encouraged to complete theme specific questionnaires at the end of each theme as they progress with the app. Researchers will administer the overall app evaluation questionnaire at end point, the end of three months from the intervention handover date or at the time that participants declare as completed. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Quality of life is assessed using 'Quality of Life in Alzheimer's disease' (QoL-AD) tool in both partners at baseline and endpoint 2. Carers related quality of life is assessed using 'Care quality of life' (CAREQOL) tool at baseline and endpoint 3. Self efficacy is assessed using 'General Self efficacy scale' (GSE) in both partners at baseline and endpoint 4. Interconnectedness is assessed using 'the inclusion of other in self scale ' (IOS) in both partners at baseline and endpoint 5. Mutuality is assessed using 'mutuality scale' (MS) in both partners at baseline and endpoint 6. Health status is assessed using EQ5D-5L in both partners and DEMQOL in partner with dementia at baseline and endpoint 7. Health and social care service use is assessed using service use questionnaire in both partners at baseline and endpoint 8. Usability is measured using Systems Usability Scale at endpoint | — |
Countries
England, Sweden, United Kingdom
Contacts
Public ContactReena Lasrado
Outcome results
None listed