HTLV-1–associated myelopathy. Tropical spastic paraplegia
Conditions
Interventions
Intervention 1: Intervention group: Patients with HTLV-1–associated myelopathy participate in a feedback-based educational program consisting of one face-to-face session and 3–4 virtual sessions via t
Sponsors
Mashhad University of Medical Sciences
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Written informed consent and willingness to participate in the study. Ownership of a smartphone and ability to use the Eitaa messaging app. Age = 18 years. Minimum literacy (basic reading and writing skills). No severe visual or hearing impairment that would prevent receiving education. Confirmed diagnosis of HTLV-1–associated myelopathy by a neurologist. No cognitive impairment according to the treating physician. At least six months have passed since the diagnosis of the disease. No participation in any formal educational program related to the disease in the past six months.
Exclusion criteria
Exclusion criteria: Unwillingness to participate in the study Severe addiction or active psychiatric disorder Severe acute or chronic disabling disease Severe stress or exposure to major stressful events in the past 6 months
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of Life. Timepoint: Quality of life will be assessed at baseline (before the intervention), immediately after the intervention, and one month post-intervention. Method of measurement: Thirty-Six-Item Short Form Health Survey Questionnaire.;Fatigue. Timepoint: Fatigue will be measured at baseline (before the intervention), immediately after the intervention, and one month post-intervention. Method of measurement: Fatigue Severity Scale.;Pain Intensity. Timepoint: Pain intensity will be measured at baseline (before the intervention), immediately after the intervention, and one month post-intervention. Method of measurement: Visual Analog Scale. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactHamidreza Zendehtalab
Mashhad University of Medical Sciences
Outcome results
None listed