Neuromuscular diseases. Muscular dystrophy
Conditions
Interventions
Intervention 1: Intervention group: For the parents and children of the intervention group, airway clearing training and breathing exercises will be carried out in the form of a care training program
Sponsors
Bagheiat-allah University of Medical Sciences
Eligibility
Sex/Gender
All
Age
No minimum to 18 Years
Inclusion criteria
Inclusion criteria: Children with neuromuscular diseases who do not have a good quality of sleep based on the score of the questionnaire. Do not take specific medicine for insomnia problems. The ability of parents to participate in webinars The child's family has the desire and consent to participate in the study. The parents do not have a mood disorder (not taking medication and not experiencing other stressful conditions outside of the child's hospitalization during the child's hospitalization)
Exclusion criteria
Exclusion criteria: Incomplete participation of parents in filling out questionnaires or participating in meetings Dissatisfaction and unwillingness of the child's family to continue working with the researcher Death of a child Having more than one child with NMD disease Having more than one child with NMD disease
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Children's sleep quality in Owens et al.'s questionnaire. Timepoint: At the beginning of the study (before the start of the intervention) and 14 days after the start of the intervention. Method of measurement: Owens et al.'s Children's Sleep Habits Questionnaire.;Parental stress. Timepoint: At the beginning of the study (before the start of the intervention) and 14 days after the start of the intervention. Method of measurement: stress response inventory scale. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactMalihe Sadat Moayed
Bagheiat-allah University of Medical Sciences
Outcome results
None listed