The effect of FRIENDS educational program on resilience and health related quality of life of adolescents with hemophilia

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

IRCT

Registry ID

IRCT20220712055451N1

Enrollment

Registered

2022-07-22

Start date

2022-09-23

Completion date

Unknown

Last updated

2022-08-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Adolescents with hemophilia. Hereditary factor VIII deficiency

Interventions

Intervention 1: Intervention group: the participants in this group will be exposed to the FRIENDS program training for children and adolescents in two intervention groups of 15 people during 10 sessio

Eligibility

Sex/Gender

All

Age

13 Years to 19 Years

Inclusion criteria

Inclusion criteria: Consent to participate in the study and sign the informed consent form by the parent and the adolescent Simultaneously obtaining a score of less than 74 in the resilience questionnaire and a score of less than 50 in the quality of life questionnaire related to overall health At least elementary education Age group 13 to 19 years old

Exclusion criteria

Exclusion criteria: Having another chronic disease The presence of mental disorders requiring immediate treatment (such as: psychiatric symptoms, substance dependence, and suicide) and treatment with antidepressants, anxiety medications, or psychotherapy programs or psychological interventions. Existence of severe stressors in life (such as parents' divorce or bereavement) during the research Simultaneous participation in similar training sessions History of participating in similar training courses in the last six months

Design outcomes

Primary

Measure	Time frame
Resilience. Timepoint: The level of patients' resilience at the beginning of the study (before the start of the intervention) and immediately after the start of the study. Method of measurement: Liebenberg and Ungar's Child and Youth Resilience Measure-28 item.;Health related quality of life. Timepoint: The level of patients' health related quality of life at the beginning of the study (before the start of the intervention) and immediately after the start of the study. Method of measurement: Health Related Quality of Life Questionnaire "KIDSCREEN-27 item.	—

Measure

Time frame

Resilience. Timepoint: The level of patients' resilience at the beginning of the study (before the start of the intervention) and immediately after the start of the study. Method of measurement: Liebenberg and Ungar's Child and Youth Resilience Measure-28 item.;Health related quality of life. Timepoint: The level of patients' health related quality of life at the beginning of the study (before the start of the intervention) and immediately after the start of the study. Method of measurement: Health Related Quality of Life Questionnaire "KIDSCREEN-27 item.

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Countries

Iran (Islamic Republic of)

Contacts

Public ContactFatemeh Keshavarz

Yasouj University of Medical Sciences

keshavarz.ftm.2017@gmail.com+98 71 3612 5223

Outcome results

None listed

Source: IRCT (via WHO ICTRP) · Data processed: Feb 4, 2026