The effect of continuous care on the quality of life of patients with thalassemia major. Beta thalassaemia
Conditions
Interventions
Intervention 1: Intervention group: At first, the quality of life questionnaire of the World Health Organization will be provided to them, and after answering it, four stages of the follow-up care mod
In the first stage, the researcher introduces himself to the patient and explains the purpose of the work to him, and in the second stage, which is the main stage of the intervention and includes 6 tr
Formation and after the completion of 6 training sessions, the third stage, which is control and follow-up, has begun, and in this stage, the patient for 3 months after the intervention, weekly and ba
The desired questionnaire is provided to individuals. Also the content of each session is as follows. Session 1: Anatomy and physiology of blood and thalassemia. In this session, what are the types of
Sponsors
Zahedan University of Medical Sciences
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Age over 18 years No problems such as mental retardation, behavioral and mental disorders, hearing, speech according to medical records Ability to access and control the patient during 3 months Complete consent of the patient and family to refer and follow up by phone and, if necessary, in person for care and to continue the training and care counseling required by the researcher Resident of Zahedan Having a cell phone in person or in the family or having a landline at home Failure to participate in similar training courses Have a minimum literacy Get a quality of life score less than 50 from the WHOQOL-BREF Quality of Life Questionnaire
Exclusion criteria
Exclusion criteria: Reluctance to continue cooperation Incidence of severe physical complications from the disease
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of life score, which is measured by the World Health Organization quality of life questionnaire and its score range is from 26-130. Timepoint: It is before the start of the intervention and one month and three months after the end of the intervention. Method of measurement: The World Health Organization Quality of Life Questionnaire, which is a 26-item questionnaire and includes 4 subscales. And the difference between the two is 28; Mental Health Sub-Scale: The sum of the scores of questions 5-6-7-11-19-26 in the questionnaire The range of scores of this subscale will be between 6 and 30 and the difference between the two is 24; Social Interface Sub-Scale: The sum of the scores of questions 20-21-22 in the questionnaire The range of scores of this sub-scale will be between 3 and 15 and the difference between the two is 12; Environmental Health Sub-Scale: The sum of the scores of the questions 8-9- 12-13- 14-23-24-25 25 in the questionnaire The range of scores of this subscale will be between 8 and 40 and the difference between the two is 32; Quality of life and general health: The sum of the scores of questions 1 and 2 in the questionnaire The range of scores of this subscale will be between 2 to 10 and the difference between the two is 8.;Physical health score that is measured by the World Health Organization quality of life questionnaire and its score range is from 7-35. Timepoint: It is before the start of the intervention and one month and three months after the end of the intervention. Method of measurement: The World Health Organization Quality of Life Questionnaire, which is a 26-item questionnaire and includes 4 subscales. Physical Health Sub-Scale: The sum of the scores of the questions 3- 4- 10- 15-16-17-18 in the questionnaire. The range of scores of this subscale will be between 7 and 35. ; And the difference between the two is 28.;Mental health score that is measured by the World Health Organization quality of life questionnaire and its score ra | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactMahnaz Ghaljeh
Zahedan University of Medical Sciences
Outcome results
None listed