Cystic Fibrosis. Cystic fibrosis
Conditions
Interventions
Intervention 1: Intervention group: in the intervention group, the educational program include: 1. Understanding cystic fibrosis: defining the disease, the cause and how to diagnose the disease 2. Tre
Sponsors
Shahid Beheshti University of Medical Sciences
Eligibility
Sex/Gender
All
Age
6 Years to 12 Years
Inclusion criteria
Inclusion criteria: Children and parent with school-age children (6-12 years) with cystic fibrosis Parent with ability to read and write At least 6 months have passed since the definitive diagnosis of the disease Mobile phone access with Android OS Ability to work with smartphones and app Parents should have physical and mental health based on self-expression
Exclusion criteria
Exclusion criteria: Unwillingness to continue caring in the middle Participation in previous same care program in Last three months
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of Life. Timepoint: Before, immediately after and one month after intervention. Method of measurement: Revised Quality of Life cystic fibrosis questionnaire. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactMaryam Alibakhshi
Shahid Beheshti University of Medical Sciences
Outcome results
None listed