Glocos 6 phospat dehydrogenaz enzim definenshe. Anaemia due to glucose-6-phosphate dehydrogenase [G6PD] deficiency
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Completion of written consent form to participate in the study Having a child with glucose-6-phosphate dehydrogenase deficiency ages 6 to 14 years Literacy and ability to complete the questionnaire in the main caregiver The main caregiver is not a member of the medical and nursing group Lack of chronic disease in other family members There is no history of formal education about favic disease before the study The ability to speak and listen to the patient and the main caregiver Being responsible for the maximum daily care of the child Having the right to decide on the prevention and treatment of childhood illness
Exclusion criteria
Exclusion criteria: Not willing to continue participating in the scheme Absence for any reason two consecutive sessions that can not attend meetings Not available for communicating and informing sessions To create a special event affecting the quality of life and the specific mental illness in the main caregiver
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Care load score in Zarit questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: caring-burden-inventory-CBI-Zarit.;McMaster family functioning score in the questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: Family Assessment Device (FAD) McMaster. | — |
Countries
Iran (Islamic Republic of)
Contacts
Birjand University of Medical Sciences