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The effect of family-centered empowerment model on family function and care burden of primary caregivers of children with favism

The effect of family-centered empowerment model on family function and care burden of primary caregivers of children with glucose-6-phosphate dehydrogenase enzyme deficiency

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
IRCT
Registry ID
IRCT20190618043936N1
Enrollment
60
Registered
2019-07-18
Start date
2019-07-23
Completion date
Unknown
Last updated
2019-10-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Glocos 6 phospat dehydrogenaz enzim definenshe. Anaemia due to glucose-6-phosphate dehydrogenase [G6PD] deficiency

Interventions

Intervention 1: Intervention group: Family-based empowerment model was implemented based on four perceived threat, self-efficacy, educational participation and evaluation. Intervention 2: Control grou

Sponsors

Birjand University of Medical Sciences
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Completion of written consent form to participate in the study Having a child with glucose-6-phosphate dehydrogenase deficiency ages 6 to 14 years Literacy and ability to complete the questionnaire in the main caregiver The main caregiver is not a member of the medical and nursing group Lack of chronic disease in other family members There is no history of formal education about favic disease before the study The ability to speak and listen to the patient and the main caregiver Being responsible for the maximum daily care of the child Having the right to decide on the prevention and treatment of childhood illness

Exclusion criteria

Exclusion criteria: Not willing to continue participating in the scheme Absence for any reason two consecutive sessions that can not attend meetings Not available for communicating and informing sessions To create a special event affecting the quality of life and the specific mental illness in the main caregiver

Design outcomes

Primary

MeasureTime frame
Care load score in Zarit questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: caring-burden-inventory-CBI-Zarit.;McMaster family functioning score in the questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: Family Assessment Device (FAD) McMaster.

Countries

Iran (Islamic Republic of)

Contacts

Public Contactsaeed kalkali

Birjand University of Medical Sciences

saeedkalkali@bums.ac.ir+98 56 3238 1400

Outcome results

None listed

Source: IRCT (via WHO ICTRP) · Data processed: Feb 4, 2026