Family-centered empowerment education on the quality of life of children with hemophilia and caring burden.. Von Willebrand's disease
Conditions
Interventions
Intervention 1: Intervention group: In order to intervene, the researcher in this study will use a family-centered empowerment model based on its comprehensive approach among all types of empowerment
Sponsors
Ahvaz University of Medical Sciences
Eligibility
Sex/Gender
All
Age
8 Years to 12 Years
Inclusion criteria
Inclusion criteria: The desire to participate in research. Diagnosis of a child with hemophilia by a physician and having a case at hematologic clinic of Baghaee Hospital, Ahvaz, Iran There is no other chronic disease other than hemophilia, such as diabetes, asthma, thalassemia. Age range 12-8 years
Exclusion criteria
Exclusion criteria: Lack of record of participation in previous training programs
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of life for children with hemophilia. Timepoint: Before the intervention and 37 days after the intervention began. Method of measurement: Hemophilia quality of life questionnaire.;Caregivers for carers of children with hemophilia. Timepoint: Before the intervention and 37 days after the intervention began. Method of measurement: Zarit's Care Bar Questionnaire. | — |
Secondary
| Measure | Time frame |
|---|---|
| Improving the quality of life. Timepoint: 45 days. Method of measurement: Hemophilia Quality of Life Questionnaire, Zarit's Care Weight Inventory. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactDr. Shahnaz Rostami
Ahvaz University of Medical Sciences
Outcome results
None listed