Implementing a follow-up care program for children with phenylketonuria.
Conditions
Interventions
Intervention group: In the intervention group, the questionnaire of informed consent, care burden, and emotional problems is completed before and after two months. The control group receives the routi
Sponsors
Khoram-Abad University of Medical Sciences
Eligibility
Sex/Gender
All
Age
3 Years to 12 Years
Inclusion criteria
Inclusion criteria: ? Children aged 3 to 12 years with a definite diagnosis of phenylketonuria? ? Child living with both parents Parental care of the child at home Other children should be healthy (no chronic diseases, abnormalities, having a child with PKU, etc.)
Exclusion criteria
Exclusion criteria: A parent or child becomes seriously ill and requires hospitalization. The child has other hereditary disorders Parents suffering from psychiatric problems or specific illnesses (according to self-declaration of psychiatric medication use)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Score obtained from the Children's Emotional Problems Questionnaire and score obtained from parental care burden, which are assessed with standard questionnaires. Timepoint: At the beginning of the study and 8 weeks after the start in both groups. Method of measurement: parental care burden and emotional problems questionnaires. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactKimia Karami
Khoram-Abad University of Medical Sciences
Outcome results
None listed