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Mindful Participation: A Program to Support Children with Autism in Self-Care performance

Designing a training program for mindful participation of parents in self-care performance of children with autism spectrum disorder aged 6-12 years based on the Canadian Model of Occupational Performance-Engagement and investigating its effectiveness on children's performance and parents' satisfaction in performing self-care skills

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
IRCT
Registry ID
IRCT20180521039770N2
Enrollment
28
Registered
2024-01-02
Start date
2024-04-03
Completion date
Unknown
Last updated
2024-01-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autism Spectrum Disorder (ASD). autistic psychopathy

Interventions

Intervention 1: Intervention group: In this research, the investigator, having completed the mindfulness training course on the Palouse Mindfulness platform in its original English content, has obtain

Sponsors

Iran University of Medical Sciences
Lead Sponsor

Eligibility

Sex/Gender
All
Age
6 Years to 12 Years

Inclusion criteria

Inclusion criteria: A confirmed diagnosis of Autism Spectrum Disorder (ASD) at Level 1 or 2 by a child psychiatrist subspecialist, determined through a semi-structured clinical interview aligned with the diagnostic criteria outlined in the 5th edition of the Diagnostic and Statistical Manual of Psychiatric Disorders. The child must have received continuous rehabilitation services for a minimum of six consecutive months over the past two years. This requirement is essential for accurately assessing parental involvement in the rehabilitation process and is a prerequisite for completing the FFQR questionnaire. Participants must have a minimum of three priorities identified in the Canadian Occupational Performance Measure (COPM) that are directly related to the child's self-care occupations. The child must be between the ages of 6 and 12 years. Parents must possess the ability to read and write. Parents must obtain a score lower than 13 on the Depression Anxiety Stress Scale (DASS), indicating an absence of very severe, severe, and moderate depression. Specifically, scores in the range of 0-9 indicate no depression, 10-13 mild depression, 14-20 moderate depression, 21-27 severe depression, and scores above 28 represent very severe depression. Parents must score lower than 110 in two specific subscales of the Mindfulness in Parenting Questionnaire (MIPQ), indicating a level of moderate to low mindfulness in parenting. Standard scores within the range of 90 to 110 are considered indicative of moderate mindful parenting, with higher scores representing elevated levels of mindfulness in parenting practices. The family must demonstrate a genuine willingness and commitment to actively engage in and fully participate in the research process.

Exclusion criteria

Exclusion criteria: Parents currently engaged in another study involving mindfulness practices will be excluded. Parents concurrently involved in psychological counseling sessions during the study period will be excluded. Exclusion applies to parents caring for a disabled person other than a child with Autism Spectrum Disorder (ASD), including children with other disorders or other family members. Participants who choose not to provide consent to continue their participation in the study will be excluded.

Design outcomes

Primary

MeasureTime frame
Child's self-care performance: In this study, "self-care performance" refers to the scores obtained by participants in the self-care performance section of the COPM. Timepoint: Assessment points are scheduled before the intervention, at 2 months, and at 4 months after the start of the intervention. Method of measurement: The Canadian Occupational Performance Measure (COPM) is a reference-oriented measurement scale assessing self-perception in self-care, productivity, recreation, and work performance. Utilizing a semi-structured interview, individuals, including parents for children with ASD, identify goals and rate performance and satisfaction on a ten-point scale. The semi-structured interview is employed to evaluate self-care performance in children with ASD.;Parent's satisfaction with the child's self-care performance: In this study, "Parent's satisfaction with the child's self-care performance" refers to the scores obtained by participants in the satisfaction section of the COPM related to self-care performance. Timepoint: Assessment points are scheduled before the intervention, at 2 months, and at 4 months after the start of the intervention. Method of measurement: The Canadian Occupational Performance Measure (COPM) is a reference-oriented measurement scale assessing self-perception in self-care, productivity, recreation, and work performance. Utilizing a semi-structured interview, individuals, including parents for children with ASD, identify goals and rate performance and satisfaction on a ten-point scale. The semi-structured interview is employed to evaluate self-care performance in children with ASD.

Secondary

MeasureTime frame
Mindful parenting: In this research, "Mindful parenting" refers to the scores obtained by parents from the scales of Mindful discipline and Being in the moment with the child in the Mindfulness in Parenting Questionnaire (MIPQ). Timepoint: Assessment points are scheduled before the intervention, at 2 months, and at 4 months after the start of the intervention. Method of measurement: Mindfulness In Parenting Questionnaire (MIPQ):The MIPQ, consisting of 28 items, assesses two factors: "Mindful discipline" and "Being in the moment with the child." The "Being in the moment with the child" factor, encompassing questions 1 to 13, gauges parenting awareness and mindfulness-based parenting. Questions 14 to 28, related to the "Mindful discipline" factor, measure parents' acceptance and empathic understanding of the child. Applicable for children and adolescents aged 2 to 16 years, the questionnaire employs a four-point Likert scale (1 rarely to 4 always). Parents reflect on their interactions with their child in the past two weeks, with standard scores falling between 90 and 110 indicating a moderate level of mindful parenting, while higher scores signify elevated mindfulness in parenting practices.;Parenting stress: In this research, "Parenting stress" will be assessed using the Parenting Stress Index-Short Form (PSI-SF). Timepoint: Assessment points are scheduled before the intervention, at 2 months, and at 4 months after the start of the intervention. Method of measurement: Parenting Stress Index-Short Form:The Parenting Stress Index-Short Form (PSI-SF) comprises 36 items designed to evaluate parental stress. Respondents rate items on a 5-point Likert scale, ranging from 1 (strongly agree) to 5 (strongly disagree). The scale encompasses three sub-scales: Parental Distress, Dysfunctional Parent-Child Interaction, and Difficult Child. The total stress score results from summing the sub-scale scores. Scores ranging from 86-90 indicate borderline stress, 91-98 signify high pa

Countries

Iran (Islamic Republic of)

Contacts

Public ContactShafagh Saei

Iran University of Medical Sciences

sh.saie@yahoo.com+98 41 3658 6994

Outcome results

None listed

Source: IRCT (via WHO ICTRP) · Data processed: Feb 4, 2026