Family-centered empowerment model for enhance quality of life of female patients with Pemphigus Vulgaris and active family member.

comparison of the effect of family-centered empowerment model based lifestyle modification on quality of life of female patients with Pemphigus Vulgaris and active family member in the intervention group with no implementation of the model in patients and active family member in the control group.

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

IRCT

Registry ID

IRCT2017061934632N1

Enrollment

144

Registered

2017-08-16

Start date

2017-06-22

Completion date

Unknown

Last updated

2022-08-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pemphigus Vulgaris. Pemphigus vulgaris

Interventions

Intervention 1: After analyzing the data before the intervention, which led to the identification of the resources, limitations, needs and strengths of the patient and his active family member in diff

The intervention phase was performed only for the intervention group and the control group did not receive any intervention. In the intervention group, the family-centered empowerment model in executi

Eligibility

Sex/Gender

Female

Age

30 Years to 60 Years

Inclusion criteria

Inclusion criteria: register Pemphigus Vulgaris according to the doctor's diagnosis in the health case women aged 30-60 years Patients' and active family member's desire and satisfaction to participate in the research; Ability to communicate verbally ; provide information and collaborate with the researcher No mental illness or other acute or chronic illness Not a member of the health team having at least literacy to complete the Questionnaire

Exclusion criteria

Exclusion criteria: the patient and active family member's unwillingness to continue to participate in research the patient has an acute or chronic illness the patient has a mental illness Patient or active family member death

Design outcomes

Primary

Measure	Time frame
Lifestyle. Timepoint: Before intervention- two months after the end of the intervention. Method of measurement: Walker- Pender health-promoting Lifestyle Questionnaire.	—

Secondary

Measure	Time frame
Quality of public life of female patients with Pemphigus Vulgaris and active family member. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: SF-36 quality of life Questionnaire.;Quality of Exclusive life of female patients with Pemphigus Vulgaris. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: Iranian version dermatology life quality index (DLQI).;Quality of exclusive life of active family member. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: The family dermatology life quality index (FDLQI).	—

Measure

Time frame

Quality of public life of female patients with Pemphigus Vulgaris and active family member. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: SF-36 quality of life Questionnaire.;Quality of Exclusive life of female patients with Pemphigus Vulgaris. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: Iranian version dermatology life quality index (DLQI).;Quality of exclusive life of active family member. Timepoint: Before intervention; two months after the end of the intervention. Method of measurement: The family dermatology life quality index (FDLQI).

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Countries

Iran (Islamic Republic of)

Contacts

Public ContactFatemah Alhani

Tarbiat Modares University

alhani_f@modares.ac.ir+98 21 8288 3898

Outcome results

None listed

Source: IRCT (via WHO ICTRP) · Data processed: Feb 4, 2026