The family empowerment.
Conditions
Interventions
Intervention 1: Intervention group: The intervention group includes the parents who have children with epilepsy, meet the inclusion criteria, and are willing to participate in the research. In the fir
Sponsors
Shiraz University of Medical Sciences
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Parents of children aged 3-7 years with epilepsy who have 6 months of diagnosis and initiation of treatment, and according to the doctor's records and diagnosis, need to go and follow up for at least one year. Acquiring informed consent and willingness to participate in research by parents Having Diploma education to bachelor's degree and enough monthly income Not participating in the same educational program The absence of physical and psychological disruption of daily activities Parents are not personnel and health care providers
Exclusion criteria
Exclusion criteria: Parents of children hospitalized with febrile of convulsion
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The main outcome measures of this study are executing the family empowerment program and enhancing the life quality of children suffering from epilepsy. The data will be collected using the Quality of Life in Children with Epilepsy (QOLCE) questionnaire, which is a specific instrument for assessing such children’s quality of life. This instrument has been derived from Health-Related Quality of Life (HRQoL) questionnaire, which is used to evaluate healthcare and medical interventions in both clinical and social domains. Timepoint: The QOLCE questionnaire will be completed by the two groups in the first session. The intervention group will receive the family empowerment program over two educational sessions. In the first session, the parents will be trained regarding the process, clinical symptoms, diagnosis, and probable complications of the disease through question and answer and educational pamphlets. The second session will involve face-to-face training during seizure, available treatments, recovery process after treatment, and necessity for long-term follow-ups. The training will be carried out both individually and in groups using educational pamphlets. After a month, the questionnaire will be completed by the parents again. Considering ethics, the control group parents will receive the educational pamphlets after completing the questionnaire. Method of measurement: The data will be collected using the QOLCE questionnaire, which is a specific instrument for assessing quality of life in children suffering from epilepsy. This instrument has been derived from HRQoL questionnaire, which is used to evaluate healthcare and medical interventions in both clinical and social domains.Children with seizure disorders are normally faced with an increased risk of behavioral and emotional problems, familial and social decline, and lower quality of life. QOLCE evaluates such children’s quality of life in four dimensions, namely cognitive function (22 items), emotional function | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactZahra Mahdavi Khanouki
Islamic Azad University
Outcome results
None listed