Hemophilia. Von Willebrand's disease
Conditions
Interventions
Intervention 1: The intervention group will receive a child illness management protocol for 8 weeks, focusing on all human dimensions, including physical, psychological, social, and spiritual dimensio
Sponsors
Islamic Azad University, Khorasgan branch
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Parents with a child aged 1-11 years; Parents with a child with a deficiency of coagulation factors; Parents having minimum literacy and internet literacy Parents living with the child in the same house; Parents' access to the internet and the social network WhatsAppParents
Exclusion criteria
Exclusion criteria: Parental participation in a similar disease management program within the past 3 months History of known physical or mental illness in parents The child has other diseases other than coagulation factor deficiency and von Willebrand disease. Adopted child Parent or child hospitalization within one month prior to the study Parents facing major crises, such as the death of a loved one or divorce, one month before the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Family Functioning. Timepoint: Beginning of the study and end of the study (8 weeks after the start of the study). Method of measurement: Using the Epstein Family Functioning Questionnaire.;Parental Anxiety. Timepoint: Beginning of the study and end of the study (8 weeks after the start of the study). Method of measurement: Using the Spielberger Parental Anxiety Questionnaire. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactFatemeh Haghanifar
Islamic Azad University, Khorasgan branch
Outcome results
None listed