Condition 1: Hemophilia A. Condition 2: Hemophilia B. Condition 3: Von Willebrand's disease. Hereditary factor VIII deficiency Hereditary factor IX deficiency Von Willebrand's disease
Conditions
Interventions
Intervention 1: Intervention group: In this group, child disease management intervention focuses on all human dimensions, including physical, psychological, social and spiritual dimensions. The conten
Sponsors
Shiraz University of Medical Sciences
Eligibility
Sex/Gender
All
Age
1 Years to 11 Years
Inclusion criteria
Inclusion criteria: Parents with a child in the age range of 1-11 years Parents of a child with coagulation factor deficiencies Parents' oriented to time, person and place Parents' living with this child in the same house Parents' access to the Internet and social networks
Exclusion criteria
Exclusion criteria: Parental participation in a similar disease management program over the past 3 months Parents suffering from known mental diseases such as depression, anxiety, and psychosis The child suffering from congenital, chromosomal, neuro-muscular and systemic diseases
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Caregiver burden. Timepoint: Before and 8 weeks after the intervention. Method of measurement: The HEMOphilia associated CAregiver Burden scale (HEMOCAB).;Parental Social adjustment. Timepoint: Before and 8 weeks after the intervention. Method of measurement: Bell’s Social Adjustment Inventory. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactMasoume Rambod
Shiraz University of Medical Sciences
Outcome results
None listed