Disease, phenylketonuria (PKU). Disorders of aromatic amino-acid metabolism
Conditions
Interventions
Intervention 1: The intervention group: personal training (face and speech), two two-hour sessions in a week for 4 weeks. Intervention 2: no intervention. Intervention 3: The intervention group: in-pe
Treatment - Drugs
The intervention group: personal training (face and speech), two two-hour sessions in a week for 4 weeks
no intervention
The intervention group: in-person training (training manuals and pamphlets) for a period of one month, every week, and follow up by phone
Sponsors
Ahvaz University of Medical Sciences
Eligibility
Sex/Gender
All
Age
1 Years to 18 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria: Having a sick child that stricken to PKU; having a file at PKU clinic of Abuzar hospital; Pediatric patient ranging from 1 to 18 years old; The parents learning ability; Having the main care provider at home. Exclusion criteria: absence of parents for at least two training sessions.
Exclusion criteria
Exclusion criteria:
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Serum phenylalanine levels. Timepoint: A month before the intervention, one month after intervention. Method of measurement: Blood Tests.;Parental awareness. Timepoint: A month before the intervention, one month after intervention. Method of measurement: Questionnaire. | — |
Countries
Iran (Islamic Republic of)
Contacts
Public ContactAkram Hemmati pour
Ahvaz University of Medical Sciences
Outcome results
None listed