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Conditions
Interventions
Group 1: Cross-sectional study of people with cystinosis visiting the cystinosis outpatient clinic at the RoMed hospital in Rosenheim, Germany.
The following tools will be used:
* the Gastrointestinal
Sponsors
fhg - Zentrum für Gesundheitsberufe Tirol GmbH / fh gesundheit
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Appointment at the multiprofessional cystinosis outpatient clinic at the RoMed hospital Rosenheim, Germany, within the duration of the study Consent to participate in the study
Exclusion criteria
Exclusion criteria: No consent to participate in the study Unavailability BIA: * Patients 10 years of age: Implanted automatic devices, e.g., pacemaker, defibrillator, pregnancy
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Gastrointestinal involvement, indicated by GSRS-IBS, BSFS | — |
Secondary
| Measure | Time frame |
|---|---|
| Energy and nutrient intake, fibre intake, psyllium intake and intake of probiotic foods, measured by two 24-hour dietary recalls Diet quality, measured by rPDQS Diet-related quality of life, indicated by DRQOL TMAO in serum Body composition, indicated by BIA measurements Participation, measured by CASP and IMET, respectively | — |
Countries
Germany
Contacts
Public ContactJudith Erler
fhg - Zentrum für Gesundheitsberufe Tirol GmbH / fh gesundheit
Outcome results
None listed