Cross-sectional survey of the care situation for patients with peripheral facial palsy

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00040617

Enrollment

Registered

2026-06-12

Start date

2026-06-22

Completion date

Unknown

Last updated

2026-06-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G51.0

Interventions

Group 1: Cross-sectional survey of people with peripheral facial palsy on their healthcare experiences and care pathways

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: We include patients aged 18 or older with periphery facial palsy.

Exclusion criteria

Exclusion criteria: Individuals who do not have sufficient German language skills to fully understand the questionnaire (below level B2 according to the Common European Framework of Reference for Languages) will be excluded.

Design outcomes

Primary

Measure	Time frame
Healthcare utilization, How? Binary/nominal (%), own development	—

Secondary

Measure	Time frame
Use of medical services, How? Binary/nominal (%), own development Use of therapies, How? Binary/nominal [BM1.1](%), own development Use of specific treatments, How? Binary/nominal (%), own development Use of assistive devices, How? Binary/nominal (%), own development Use of medications, How? Binary/nominal (%), own development Work ability, How? Continuous[BM2.1], 0 to 10 points and binary/nominal (%), modified Productivity Costs Questionnaire (Bouwmans et al., 2015) Restrictions on unpaid work, How? Binary/nominal (%), modified Productivity Costs Questionnaire (Bouwmans et al., 2015) Self-esteem, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Restrictions on engaging in hobbies, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Restrictions on social contact, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Use of exercise programs, How? Binary/nominal (%), modified Glasgow-Benefit-Inventory (GBI) (Robinson et al., 1996) Participation in self-help groups, How? Binary/nominal (%), modified Glasgow-Benefit-Inventory (GBI) (Robinson et al., 1996) Quality of life, How? Continuously, 0 to 10 points & binary/nominal (%), modified Fragebogen zur Studie Gesundheit in Deutschland aktuell: GEDA 2019/2020 - EHIS (Allen et al., 2021)	—

Measure

Time frame

Use of medical services, How? Binary/nominal (%), own development Use of therapies, How? Binary/nominal [BM1.1](%), own development Use of specific treatments, How? Binary/nominal (%), own development Use of assistive devices, How? Binary/nominal (%), own development Use of medications, How? Binary/nominal (%), own development Work ability, How? Continuous[BM2.1], 0 to 10 points and binary/nominal (%), modified Productivity Costs Questionnaire (Bouwmans et al., 2015) Restrictions on unpaid work, How? Binary/nominal (%), modified Productivity Costs Questionnaire (Bouwmans et al., 2015) Self-esteem, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Restrictions on engaging in hobbies, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Restrictions on social contact, How? Binary/nominal (%), modified Facial Disability-Index (FDI) (Volk et al., 2014) Use of exercise programs, How? Binary/nominal (%), modified Glasgow-Benefit-Inventory (GBI) (Robinson et al., 1996) Participation in self-help groups, How? Binary/nominal (%), modified Glasgow-Benefit-Inventory (GBI) (Robinson et al., 1996) Quality of life, How? Continuously, 0 to 10 points & binary/nominal (%), modified Fragebogen zur Studie Gesundheit in Deutschland aktuell: GEDA 2019/2020 - EHIS (Allen et al., 2021)

—

Countries

Germany

Contacts

Public ContactMatthias Bethge

Universität zu Lübeck, Institut für Sozialmedizin und Epidemiologie

matthias.bethge@uksh.de+49 451 50051280

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 29, 2026