Pediatric Healthcare Networks as a Healthcare Delivery Structure
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Study Component: Interviews with Network Staff It is intended that all participating healthcare networks are represented among the interview participants. Study Component: Survey of Caregivers Eligible participants are caregivers of pediatric patients who are currently receiving or have previously received care at one of the participating network hospitals (including all hospitals affiliated with the respective networks). Study Component: Survey of Office-Based Pediatricians The survey targets office-based pediatricians throughout Germany who provide care for pediatric patients. Study Component: Workshops with Patients and Caregivers Eligible participants are patients aged 16 to 18 years and caregivers of patients who have received care at a hospital affiliated with one of the four participating networks. Participants of the first workshop round will be invited and encouraged to participate in the second workshop round to ensure continuity and facilitate the further development and validation of the project results.
Exclusion criteria
Exclusion criteria: Missing informed consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Primary Research Question What generalizable insights can be derived from the four participating pediatric healthcare networks regarding the successful development, implementation, and long-term sustainability of network structures, and how can these insights be integrated into a generic network model?** Primary Outcomes * Development of a comprehensive network model based on the framework proposed by Kim et al. (2020) * Identification and categorization of key success and failure factors across networks * Development of thematic modules for a publicly accessible project website and online implementation manual * Creation of practical recommendations for the establishment, implementation, and sustainable operation of pediatric healthcare networks Data Collection and Analysis The primary outcome will be generated through the synthesis of all outcomes from the secondary research questions. Findings from the comparative case study, surveys, interviews, process analyses, health economic and legal analyses, as well as the systematic literature review will be integrated and transferred into a generic, modular network model for pediatric healthcare networks. | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary Research Questions 1. What are the needs of pediatric patients, their caregivers, and their representative organizations regarding the design of healthcare network structures, and how can these needs be integrated into the network model? **Outcome:** Results of the needs assessment; integration and representation within the respective network model modules. **Data Collection:** Needs assessment through surveys. 2. What are the success and failure factors of networks in pediatric and perinatal healthcare? **Outcome:** Identification and categorization of success and failure factors based on the i-PARIHS framework. **Data Collection:** Semi-structured interviews, surveys of network coordinators, and analysis of existing project results and network data. 3. To what extent can specific network-related processes, such as documentation and communication, be standardized? **Outcome:** Results of the process analysis and recommendations for standardization. **Data Collection:** Analysis of network process documents and operating procedures. 4. How can the long-term financing and sustainability of healthcare networks be designed and secured? **Outcome:** Overview of potential financing mechanisms; development of guidance for the cost calculation of individual network services under different financing scenarios. **Data Collection:** Document analysis, analysis of operational and performance data from participating networks, literature review, and semi-structured expert interviews. 5. How can patients, their families, and patient organizations be involved early and actively in the establishment and development of healthcare networks? **Outcome:** Development of a Patient and Public Involvement (PPI) / Patient and Public Participation and Involvement (PPPI) manual, including templates and practical examples. **Data Collection:** Open Space workshop involving patients, families, patient representatives, and relevant stakeholders. 6. How | — |
Countries
Germany
Contacts
Universitätsmedizin Greifswald, Institut für Community Medicine