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MS-PAVED - Platform for Connectivity, Trust, Experience, and Documentation

MS-PAVED - Platform for Connectivity, Trust, Experience, and Documentation - MS-PAVED

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00040506
Enrollment
1000
Registered
2026-07-06
Start date
2026-07-06
Completion date
Unknown
Last updated
2026-08-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G35

Interventions

Group 1: Basic Questionnaire: Information on subjective well-being, sociodemographic data (e.g., gender, age, region of residence), initial disease-related information (e.g., onset and diagnosis date

Sponsors

MS Forschungs- und Projektentwicklungs-gGmbH
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: - Medically diagnosed multiple sclerosis (self-reported) - Willingness and ability to participate in the survey independently

Exclusion criteria

Exclusion criteria: - No multiple sclerosis (self-reported) - Lack of legal capacity

Design outcomes

Primary

MeasureTime frame
The primary objective of the study is the standardized collection of patient-reported data from people with MS. In particular, the study will capture disease-related aspects, psychosocial issues, lifestyle, and the care situation. In addition, the study will assess the acceptance of patient-reported documentation.

Secondary

MeasureTime frame
This is a prospective, non-interventional observational study of an exploratory and descriptive nature. No primary or secondary endpoints are defined in the sense of a hypothesis-testing study.

Countries

Germany

Contacts

Public ContactAnna-Lena Röper

MS Forschungs- und Projektentwicklungs-gGmbH

roeper@msregister.de05114445955

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Aug 10, 2026