Congenital heart disease / paediatric cardiac disease requiring cardiac surgery
Conditions
Interventions
Group 1: Children (6–17 years)
Children with a history of cardiac surgery participate in two anonymous online surveys: an initial idea-generating survey and a second prioritisation survey regarding re
Sponsors
Deutsches Herzzentrum der Charité (DHZC)
Eligibility
Sex/Gender
All
Age
6 Years to No maximum
Inclusion criteria
Inclusion criteria: - sufficient German language skills to complete the German-language online surveys and participate in the consensus workshops, - access to an internet-enabled device
Exclusion criteria
Exclusion criteria: - lack of consent to participate in the study - insufficient German language skills to complete the German-language study materials - residence outside Germany
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Development of group-specific top 10 lists of research priorities in paediatric cardiac surgery and anaesthesia based on the results of the prioritisation surveys and consensus workshops involving children, young adults, parents/carers, and clinicians. | — |
Secondary
| Measure | Time frame |
|---|---|
| Development of unprioritised lists of additional research ideas, thematic categorisation and structuring of submitted research suggestions, generation of longlists and ranked lists of relevant research topics, comparative analysis of research priorities between the different participant groups. | — |
Countries
Australia
Contacts
Public ContactMaren Kleine-Brüggeney
Deutsches Herzzentrum der Charité (DHZC)
Outcome results
None listed