Development of Functional and Structural Parameters in Patients with Pseudoxanthoma Elasticum

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00039948

Enrollment

200

Registered

2026-05-06

Start date

2026-04-09

Completion date

Unknown

Last updated

2026-06-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Pseudoxanthoma elasticum 758

Interventions

Group 1: Retrospective analysis of all patients with pseudoxanthoma elasticum who were examined and followed at the Department of Ophthalmology, University Hospital Bonn, between 1996 and the 2026, in

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Pseudoxanthoma elasticum, examined and followed at the Department of Ophthalmology, University Hospital Bonn, between 1996 and the present.

Exclusion criteria

Exclusion criteria: Other retinal diseases than pseudoxanthoma elasticum.

Design outcomes

Primary

Measure	Time frame
Extent of Peau d’orange (inner and outer boundary)	—

Secondary

Measure	Time frame
Age at first occurrence of macular neovascularization, age at first occurrence of macular atrophy, longitudinal best-corrected visual acuity (BCVA), time to BCVA <0.4 (decimal), size of macular atrophy, time to first intravitreal injection	—

Countries

Germany

Contacts

Public ContactKristina Pfau

Universitätsklinikum Bonn

kristina.pfau@ukbonn.de022828715505

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 11, 2026