Caregiving within chosen families: Experiences and needs of LGBTQ* caregivers in end-of-life care

Caregiving within chosen families: Experiences and needs of LGBTQ* caregivers in end-of-life care - FiWaL

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00039945

Enrollment

Registered

2026-04-15

Start date

2026-05-01

Completion date

Unknown

Last updated

2026-04-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

LGBTQ* caregivers in a queer relationship with patients at the end of life

Interventions

Group 1: Informal caregiver experiences will be explored using (1) guided interviews and (2) sociodemographic questionnaires This will capture the experiences of caregivers, their needs, resou

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Inclusion criteria: People identifying as non-cis-heterosexual, who have experienced the role of caregiver within a queer relationship and/or as part of a chosen family during end-of-life-care.

Exclusion criteria

Exclusion criteria: Exclusion criteria: (1) Significant (anticipated) emotional distress caused by the interview process (2) Insufficient proficiency of the German language (3) Lack of informed consent to participate in the study

Design outcomes

Primary

Measure	Time frame
The aim of this study is to explore the experiences and needs of queer chosen families in the context of end-of-life care. Furthermore, it seeks to generate scientific insights into the lived realities of LGBTQ* individuals, thereby advancing a more inclusive and diverse understanding of family.	—

Countries

Germany

Contacts

Public ContactFranziska A. Herbst

Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin

Herbst.Franziska@mh-hannover.de+49 511 532 4991

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: May 1, 2026