Anesthetic management of patients with rare diseases and the use and evaluation of information resources supporting perioperative care.
Conditions
Interventions
Group 1: Single-arm, non-interventional observational study.
A one-time anonymous online survey is conducted among anesthesiologists to assess the use and perception of the “OrphanAnesthesia” project
Sponsors
Klinik für Anästhesiologie und operative Intensivtherapie, UKGM, Standort Marburg
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Eligible for participation are anesthesiologists and physicians practicing in anesthesiology worldwide, regardless of their level of experience, area of specialization, or type of institution. Voluntary participation
Exclusion criteria
Exclusion criteria: Decision not to participate in the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Primary outcome is the descriptive assessment of awareness, frequency of use, and overall evaluation of the OrphanAnesthesia platform among anesthesiologists worldwide. WHEN: Assessed once at the time of participation in the online survey during the recruitment period. HOW: Data collection via a standardized, anonymous web-based questionnaire (SurveyMonkey), based on self-reported responses. | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcomes include: - sources of information used for anesthetic management of patients with rare diseases, - attitudes towards and expectations of a potential OrphanAnesthesia app (e.g., impact on usage and patient safety), - identification of areas for improvement and desired features of the platform. WHEN: Assessed once during participation in the online survey. HOW: Data collected via a standardized, anonymous web-based questionnaire (SurveyMonkey). | — |
Countries
Germany
Contacts
Public ContactChristine Gaik
Klinik für Anästhesiologie und operative Intensivtherapie, UKGM, Standort Marburg
Outcome results
None listed