SUPPORT-LIFE-LUNG Study–Support needs for tertiary prevention and lifestyle-related self-management in chronic lung disease: An exploratory cross-sectional study

SUPPORT-LIFE-LUNG Study–Support needs for tertiary prevention and lifestyle-related self-management in chronic lung disease: An exploratory cross-sectional study - SUPPORT-LIFE-LUNG

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00039649

Enrollment

400

Registered

2026-03-26

Start date

2026-03-30

Completion date

Unknown

Last updated

2026-04-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Chronic diseases of the respiratory system were defined according to ICD-10 codes (in particular J40–J47, J60–J70, J81–J84, and J90–J99), supplemented by Cystic Fibrosis (E84), pulmonary neoplasms (C34), and pulmonary vascular diseases (I26–I28). In addition, sleep-related breathing disorders (G47.3), such as Obstructive Sleep Apnea, were included due to their relevance for pneumological care and tertiary preventive interventions. J40-J47 J60-J70 J80-J84 J90-J94 J95-J99 E84 C34 I26-I28

Interventions

Group 1: The primary objective of this cross-sectional, single-center exploratory study is to assess and quantify the subjectively perceived need for preventive measures and support among patients wit

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Patient at the Thorax Clinic Heidelberg Physician-diagnosed chronic respiratory disease Sufficient cognitive and language abilities to complete the questionnaire (e.g., inability to complete the questionnaire independently or insufficient proficiency in German)

Exclusion criteria

Exclusion criteria: No consent / patient refuses to complete the questionnaire

Design outcomes

Primary

Measure	Time frame
What preventive and supportive needs are subjectively perceived by the patients? To what extent are these needs being addressed by the medical staff? What degree of readiness and motivation for change have the patients demonstrated, both historically and at present? (Assessed via a specially developed questionnaire; single-point data collection.	—

Secondary

Measure	Time frame
- Differences in the perceived relevance of the various needs among patients - Differences in preventive and supportive care needs between selected disease groups (e.g., COPD versus other pulmonary conditions) - Differences in perceived needs as a function of sociodemographic characteristics (e.g., age, gender) - Differences in readiness for change in relation to sociodemographic characteristics - Analysis of unmet support needs despite an existing willingness to engage in change	—

Measure

Time frame

- Differences in the perceived relevance of the various needs among patients - Differences in preventive and supportive care needs between selected disease groups (e.g., COPD versus other pulmonary conditions) - Differences in perceived needs as a function of sociodemographic characteristics (e.g., age, gender) - Differences in readiness for change in relation to sociodemographic characteristics - Analysis of unmet support needs despite an existing willingness to engage in change

—

Countries

Germany

Contacts

Public ContactPhoebe Ullrich

Thoraxklinik

phoebe.ullrich@med.uni-heidelberg.de004962213967887

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: May 1, 2026