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Dying in prison. Exploration of the experiences and needs of prisoners and the reality of care provision

Dying in prison. Exploration of the experiences and needs of prisoners and the reality of care provision - ARREST

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00039433
Enrollment
45
Registered
2026-02-23
Start date
2026-07-01
Completion date
Unknown
Last updated
2026-03-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Palliative patients

Interventions

Group 1: One-time, narrative interviews with incarcerated or released individuals with a serious, life-limiting illness Group 2: One-time, guided interviews with caregivers within the prison system Gr

Sponsors

Medizinische Hochschule Hannover
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: A) Prisoners and released prisoners who have been diagnosed with an incurable, progressive, life-limiting illness while in prison (in open or closed detention) B) Internal caregivers: employees of a prison in Lower Saxony who have already been involved in caring for seriously ill and dying prisoners C) External caregivers: employees of palliative care services who have already been involved in the care of seriously ill and dying prisoners in Lower Saxony

Exclusion criteria

Exclusion criteria: Cognitive impairments (e.g., dementia), insufficient knowledge of German Discontinuation criterion: significant emotional stress during the interview

Design outcomes

Primary

MeasureTime frame
The two primary objectives of this exploratory, open-ended study are (i) to identify the experiences, needs, and wishes of seriously ill and dying prisoners and released prisoners with regard to care in prison (group A) (ii) to record the reality of palliative care in prison (groups B and C)

Secondary

MeasureTime frame
The results from (i) and (ii) are compared and combined to provide a multi-perspective overview. This, in turn, reveals (iii) whether and in what form there are deficits or previously unmet needs in the area of palliative care in prisons

Countries

Germany

Contacts

Public ContactStephanie Stiel

Mediznische Hochschule Hannover

Stiel.Stephanie@mh-hannover.de+49 511 532-4548

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Mar 14, 2026