ORPHA:793 SAPHO-Syndrom
Conditions
Interventions
Group 1: Arm 1: SAPHO Group
Assessment of patients with a confirmed diagnosis of SAPHO syndrome. The diagnostic process follows the DC/TMD criteria and includes standardized questionnaires as well as
Sponsors
MHH-Klinik für Zahnärztliche Prothetik und Biomedizinische Werkstoffkunde
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Patients who have been diagnosed with SAPHO syndrome by experts in rare diseases
Exclusion criteria
Exclusion criteria: -Psychological impairments that prevent understanding of the questionnaire, the study, or the ability to provide informed consent -Refusal to participate in the study -Lack of capacity to provide informed consent -Patients with Total Temporomandibular Joint Replacement (TMJ) -Patients under the age of 18
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Investigation of a potential association between SAPHO syndrome and temporomandibular disorders (TMD) | — |
Secondary
| Measure | Time frame |
|---|---|
| -Is it possible to identify a typical symptomatic presentation in patients with SAPHO syndrome? -Which temporomandibular disorder (TMD) symptoms are observed in patients with SAPHO syndrome, and how frequently do they occur? -Do the clinical findings, imaging results, and/or completed questionnaires suggest the presence of more than one dental problem, or indicate possible signs of a rare disease? | — |
Countries
Germany
Contacts
Public ContactTina Willmen
MHH-Klinik für Zahnärztliche Prothetik und Biomedizinische Werkstoffkunde
Outcome results
None listed