patients' perspectives on symptom- or stress-driven access to palliative care services
Conditions
Interventions
Group 1: Qualitative interview study with patients from various oncological departments at CCC-LMU who participated in digital screening for stress and support needs
Sponsors
Klinik für Palliativmedizin der LMU
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Patients with solid tumors or malignant hematological neoplasms - Participation in digital stress screening - Day clinic or inpatient oncological treatment at LMU Hospital
Exclusion criteria
Exclusion criteria: - Patients who do not have a sufficient understanding of written and spoken German - Patients who are younger than 18 years of age - Patients who, in the opinion of the attending physicians, are too stressed by the overall situation or illness - Acute or chronic qualitative or quantitative impairment of consciousness (e.g., delirium, advanced dementia, neurological impairment due to underlying disease), which prevents a valid interview from being conducted
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Data collection will be conducted using semi-structured, guided interviews. The primary endpoint will be determined by the achievement of data saturation. In view of the group heterogeneity generated by predefined sampling characteristics, data saturation is expected to be achieved after 18-22 interviews. Field experience and data analysis will be continuously reviewed (parallel process of data collection and analysis) with a particular focus on the topics relevant to the study objectives. If it is determined that the collected data is sufficiently in-depth to reveal the patterns, categories, and diversity of the phenomena, the point of data saturation has been reached. Two further interviews will be conducted to confirm that no new information is emerging, that the results provide a maximum of information, and that the sample size is therefore sufficient. | — |
Secondary
| Measure | Time frame |
|---|---|
| The objectives of the study are to explore and record patients' perspectives on digital stress screening for assessing support needs. The following study objectives were defined: Primary study objective: To record and describe the experiences, attitudes, and opinions of patients at the CCC-LMU regarding digital stress screening to determine support needs, with a particular focus on palliative care needs, symptom burden, and distress, as well as attitudes toward palliative care. Secondary study objectives: 1. To record and describe experiences with digital stress screening 2. To record and describe motivation and expectations regarding screening 3. To record and describe aspects of screening that are lacking or in need of improvement 4. To record and describe opinions on the type of data collection using a PROM (patient-reported outcome measures) 5. Recording and describing the level of knowledge regarding palliative care 6. Exploring and describing associations with the term “palliative care” (emotions, concerns, fears, ideas) 7. Recording and describing the desired timing of palliative care involvement and initiation of contact | — |
Countries
Germany
Contacts
Public ContactClaudia Bausewein
Klinik für Palliativmedizinder LMU
Outcome results
None listed