Advance Directives
Conditions
Interventions
Group 1: Cancer patients (both with and without an advance directive
n = approx. 15) will be interviewed once in a qualitative, semi-structured interview (duration approx. 30 minutes) about their general views on, as well as their reasons for (not) creating an advance
n = approx. 15) will be interviewed once in a qualitative, semi-structured interview (duration approx. 30 minutes) about their experiences in working with, as well as about their needs regarding the c
Sponsors
Institut für angewandte und klinische Ethik im Gesundheitswesen, Philipps-Universität Marburg
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Group 1 (cancer patients): - Sufficient knowledge of the German language - Capacity to consent - Age > 18 years; not under guardianship - Cancer diagnosis - Consent to participate - Suitability for participating in interviews (as determined by a physician) Group 2 (healthcare professionals): - Clinical experience in dealing with advance directives - Sufficient knowledge of the German language - Capacity to consent - Consent to participate
Exclusion criteria
Exclusion criteria: Group 1 (cancer patients): - Absence of any of the inclusion criteria, in particular physical limitations due to the disease state (e.g., dyspnea with oxygen requirement of more than 2 L O2/min or need for O2 administration via face mask, e.g., severe physical exhaustion due to septic illness, high symptom burden due to illness (pain, nausea), cognitive limitations (due to dementia, opiate-based pain therapy, advanced stage of illness), emotional limitations (acute grief process, multiple stresses, acute psychological or psychiatric preexisting conditions) Group 2 (healthcare professionals): - Absence of any of the inclusion criteria
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Arm 1 (cancer patients): Expectations/ideas regarding the effects of an advance directive on their own medical care; motivations/reasons for (not) creating an advance directive; experiences in creating an advance directive. Arm 2 (healthcare professionals): Experience-based knowledge regarding the implementation of advance directives in clinical practice; needs regarding the specific content of advance directives. In accordance with an iterative research process, the endpoints of both study arms are being monitored parallel to the interview phase using interpretative, qualitative methodology (reflexive thematic analysis according to Braun & Clarke). | — |
Secondary
| Measure | Time frame |
|---|---|
| Group 1 + Group 2: General attitudes and perspectives on advance directives. In accordance with an iterative research process, the endpoints of both study arms are reviewed parallel to the interview phase using interpretative, qualitative methodology (reflexive thematic analysis according to Braun & Clarke). | — |
Countries
Germany
Contacts
Public ContactCarola Seifart
Institut für angewandte und klinische Ethik im Gesundheitswesen, Philipps-Universität Marburg
Outcome results
None listed