People with intellectual disabilities according to ICD-10 (F70–F79). In addition, syndromes associated with ID are included, such as Rett syndrome (F84.2), encephalocele (Q01), microcephaly (Q02), Down syndrome (Q90), Edwards and Patau syndromes (Q91), other trisomies (Q92), and Fragile X syndrome (Q99.2).
Conditions
Interventions
Group 1: Experts from research, programme design, and clinical practice who will be interviewed on barriers, facilitators, good practices, and recommendations in cancer screening for people with intel
Sponsors
Deutsche Krebsgesellschaft e. V.
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: a) Experts from at least one of the following areas: - Clinical care (e.g. physicians, nurses) - Health policy, health research, professional association or scientific society - Advocacy for people with intellectual disabilities b) Relevant experience in at least one of the following areas: - Design, implementation, or evaluation of cancer screening programmes - Work with people with intellectual disabilities Participants (experts) come from various European countries; however, recruitment, interviews, coordination, and data analysis are carried out exclusively by the German Cancer Society in Berlin, Germany.
Exclusion criteria
Exclusion criteria: Persons without relevant background in these areas
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Identification of barriers, facilitators, good practices, and recommendations for cancer screening in people with intellectual disabilities along the WHO Screening Pathway | — |
Secondary
| Measure | Time frame |
|---|---|
| Description of national contexts of cancer screening (European comparison) and development of practice-oriented recommendations for programme design and clinical care | — |
Countries
Austria, Belgium, Croatia, Cyprus, Czechia, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Italy, Latvia, Lithuania, Malta, Moldova, Netherlands, Norway, Poland, Portugal, Romania, Slovakia, Slovenia, Spain, Sweden, Ukraine
Contacts
Public ContactCarmen Koko
Deutsche Krebsgesellschaft e. V.
Outcome results
None listed