G40
Conditions
Interventions
Group 1: Adolescents with epilepsy who are treated at the Epilepsy Center Frankfurt (neuropediatrics and neurology) or at the MZEB Hattersheim are surveyed in this study using questionnaires on their
Sponsors
Goethe Universität Frankfurt, Universitätsmedizin Frankfurt Klinik für Kinder- und Jugendmedizin Schwerpunkt für Neuropädiatrie und Epilepsiezentrum Frankfurt Rhein-Main
Eligibility
Sex/Gender
All
Age
14 Years to 21 Years
Inclusion criteria
Inclusion criteria: Epilepsy as defined by the ILAE (International League Against Epilepsy) with age at initial diagnosis of epilepsy < 18 years and with more than one previous contact with a neuropediatrician, neuropediatric specialist consultation, or connection to a SPZ Understanding and consent to the information provided or information provided to the legal guardian
Exclusion criteria
Exclusion criteria: No confirmed diagnosis of epilepsy Age = 22 years
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Differences in concerns regarding the transition process between patients and their parents within the Frankfurt transition concept and patients referred from outside without a structured transition concept, as well as between mentally disabled and non-disabled patients. | — |
Secondary
| Measure | Time frame |
|---|---|
| Differences in concerns between parents and transition patients; differences in the above points between patients within the Frankfurt transition concept and patients referred from outside without a structured transition concept, readiness for the transition process, patient knowledge about epilepsy, quality of life of adolescents with epilepsy, and psychological comorbidities. | — |
Countries
Germany
Contacts
Public ContactSusanne Schubert-Bast
Universitätsmedizin Frankfurt Klinik für Kinder- und Jugendmedizin Schwerpunkt für Neuropädiatrie und Epilepsiezentrum Frankfurt Rhein-Main
Outcome results
None listed