Palliative care goals and individual quality of life of patients with fibrosing lung disease and their relatives

Palliative care goals and individual quality of life of patients with fibrosing lung disease and their relatives - PalFi

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00037620

Enrollment

Registered

2025-08-18

Start date

2025-08-18

Completion date

Unknown

Last updated

2025-10-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

J84.1

Interventions

Group 1: Patients with fibrosing lung disease and their relatives As part of the qualitative component of the study, patients and their relatives are interviewed with regard to their current care sit

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: capable of giving consent; have the diagnosis of an fILD

Exclusion criteria

Exclusion criteria: insufficient German language skills; participant is in a health condition that, due to a life-threatening situation, does not allow for conversations; shows significant cognitive impairments; is a minor; not capable of giving consent

Design outcomes

Primary

Measure	Time frame
Palliative care goals (IPOS & qualitative assessment) Quality of Life (K-BILD & qualitative assessment)	—

Secondary

Measure	Time frame
REOLC=Readiness for End-of-Life Conversations HADS=Hospital Anxiety and Depression Scale Knowledge and understanding of palliative care Determinants of the successful implementation of palliative care services	—

Countries

Germany

Contacts

Public ContactMatthias Villalobos

Universitätsklinikum Heidelberg Thoraxklinik Heidelberg gGmbH

matthias.villalobos@med.uni-heidelberg.de062213960

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026