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National rheumatology database of the German Rheumatism Research Centre and the Regional Cooperative Rheumatism Centres in the German Society for Rheumatology

National rheumatology database of the German Rheumatism Research Centre and the Regional Cooperative Rheumatism Centres in the German Society for Rheumatology

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00037462
Enrollment
15000
Registered
2025-09-30
Start date
2007-02-01
Completion date
Unknown
Last updated
2026-04-27

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

M05 M06 M45 M08.1 M07.0 M07.1 M07.2 M07.3 L40.5 M09 M07

Interventions

Group 1: Persons with a physician reported diagnosis of an inflammatory rheumatic disease Data is collected once a year as part of the rheumatology consultation. Physician reported items: - Diagnosis

Sponsors

Deutsches Rheuma-Forschungszentrum
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: -Signed declaration of consent -(Suspected) inflammatory rheumatic disease -Sufficient German language skills to complete the questionnaire

Exclusion criteria

Exclusion criteria: Insufficient knowledge of German No consent to participate in the study

Design outcomes

Primary

MeasureTime frame
Ongoing observation of healthcare provision for persons with inflammatory rheumatic diseases

Secondary

MeasureTime frame
-To gain insights into disease progression, disease burden and the medical, social and economic consequences of inflammatory rheumatic diseases in routine care settings -To examine the care situation prior to referral to a rheumatologist, treatment behaviour and its variations within rheumatology, and the disease burden for different inflammatory rheumatic diseases -Gain new insights into the prognosis of various inflammatory rheumatic diseases under current care conditions through long-term observation of all patients receiving continuous rheumatological care -Contribute to the evaluation of cost structure in relation to quality of life and treatment by collecting direct (treatment-related) and indirect (work-related) costs.

Countries

Germany

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: May 1, 2026