childhood-onset intellectual disability
Conditions
Interventions
Group 1: Based on the approach of the James Lind Alliance: Two online questionnaire surveys, each lasting four months, and a prioritisation workshop to identify relevant topics for hospital care for p
Sponsors
Universitätsklinikum Augsburg
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Place of residence or work in Bavaria Capacity to consent Belonging to one of the following target groups: - People with a childhood onset intellectual or complex disability - Relatives of people with intellectual disabilities - (Specialised) staff in hospitals - care providers in specialized living arrangements for persons with intellectual disabilities
Exclusion criteria
Exclusion criteria: Place of residence and work outside Bavaria Minor age Lack of capacity to consent Not belonging to the target group
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| This study aims to identify the salient research questions for improving hospital care of adults with childhood onset intellectual disabilities by collecting and prioritizing the different perspectives of people with intellectual disabilities, their informal and formal caretakers and and clinicians that are delivering hospital care for persons with intellectual disabilities. | — |
Countries
Germany
Contacts
Public ContactTanja Fritsch
Universitätsklinikum Augsburg
Outcome results
None listed